Search

The MSUD Family Support Group is a tax exempt 501(c)3 organization with no paid staff. All donations are tax deductible. Our tax exempt ID # is 54-1556981

You have shared with us that finding better treatments and ultimately a cure for MSUD is a high priority for you and our Board of Directors has made this a key goal. The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.

Many of you have helped us in the past by donating money or fundraising to support various projects and we are very grateful for your previous support.

We are reaching out to you again for assistance.
Here is how you can help:
  1. Send a donation to the MSUD Family Support Group. Make check payable to MSUD Family Support Group and mail it to:

    Dave Bulcher, MSUD Treasurer
    9517 Big Bear Avenue
    Powell, Ohio 43065

    or via credit card through PayPal below.

    Indicate if you would like your contribution to go toward the General Fund or the Research Fund.
  2. Reach out to your family and friends and encourage them to donate to the MSUD Family Support Group. Personalized letters are the most effective tool. You may want to include a picture of the individual affected by MSUD. See the sample letter included in this mailing to model your letter after if desired.
    Sample Letter
  3. Check with the HR department of your employer to determine if they have a program to match your donation.

Thanks for your help in improving the lives of those with MSUD and working towards a cure.

MSUD Family Support Group Board of Directors

If you would like to mail-in your donation to us Click here to print the donation form.

MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

Read More

Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

Read More

My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

Read More

From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

Read More

Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

Read More

Indigo Charlie Mays - Variant MSUD Age 4

Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates