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Presentations:
  • Dr. Melissa Wasserstein (pdf)
  • Wesley Leinbach (pdf)
    Wesley Leinbach is an MSUD parent.  He works for Keystone Mills as a dairy cow nutritionist. (Coincidentally, formulating dairy rations, like feeding an MSUD child, requires balancing the diet for an appropriate supply and ratio of amino acids.)  He also serves as one of the pastors for a Mennonite church.  His most important job is being a dad.  He will share a parent's perspective on the risks of both medical management of MSUD and liver transplant.
  • Sandy Van Calcar (pdf)
  • Yetsa Osara (pdf)
  • James Traylor (pdf)
  • Dr. Brendan Lee (pdf)
  • Dr. Stephen Strom (pdf)





Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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Transform

A Child's Life

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