| 
H1N1 Flu (Swine Flu) PDF Print E-mail
This article is dedicated to discussing the H1N1 (Swine Flu) that's going around globally. Unfortunately there are no known information about this virus specific to MSUD. It is in our best interest to share any knowledge of this virus so we may help those seeking information.

If you know of any MSUD related articles/papers/experience about H1N1, please leave a comment at the end of the article, or for registered members, post questions/answers to our forum by visiting the 'H1N1' topic.


The following is taken from the CDC website about who should receive the vaccination first when it's available.
  • Pregnant women because they are at higher risk of complications and can potentially provide protection to infants who cannot be vaccinated;
  • Household contacts and caregivers for children younger than 6 months of age because younger infants are at higher risk of influenza-related complications and cannot be vaccinated. Vaccination of those in close contact with infants less than 6 months old might help protect infants by “cocooning” them from the virus;
  • Healthcare and emergency medical services personnel because infections among healthcare workers have been reported and this can be a potential source of infection for vulnerable patients. Also, increased absenteeism in this population could reduce healthcare system capacity;
  • All people from 6 months through 24 years of age
    • Children from 6 months through 18 years of age because we have seen many cases of novel H1N1 influenza in children and they are in close contact with each other in school and day care settings, which increases the likelihood of disease spread, and
    • Young adults 19 through 24 years of age because we have seen many cases of novel H1N1 influenza in these healthy young adults and they often live, work, and study in close proximity, and they are a frequently mobile population; and,
  • Persons aged 25 through 64 years who have health conditions associated with higher risk of medical complications from influenza.

Since MSUD patients (all types) are more susceptible to complications with the flu, speak to your doctor about getting the vaccination as soon as it's available.

For more information about H1N1, please visit the Centers for Disease Control at the website below:

CDC website
Comments (3)
  • swinter
    I do not believe that any information is available, yet, about the risk of Guillian Barre syndrome with this new vaccine. As with all vaccines, the risk will be there. The H1N1 virus is a serious disease and we have already had a patient, not with MSUD but with an undiagnosed metabolic disorder, die from overwhelming pneumonia. Since this virus seems to be targeting the young, I would think that children with MSUD would be better to risk Guillian Barre syndrome with a low risk of occurring than to risk getting a fatal case of the H1N1 viral infection which would be high. I am not an infectious disease expert but do think that the viral threat is much, much greater than the threat Guillian Barre.
  • hmorton
    We have always recommended flu vaccines for patients with MSUD, and other metabolic disorders that become unstable during infectious illnesses.

    The risk of serious metabolic illness is very high in a person with MSUD who is ill for several days with any form of influenza. The majority MSUD patients with high fever, vomiting, and dehydration will require hospitalization to prevent or reverse metabolic intoxication. In this setting the risk of strokes or death from cerebral edema is high under the best care.

    Unfortunately, on a population basis, all vaccines do have a measurable risks of adverse reactions, including Guillian Barre Syndrome. However, adverse vaccine reactions are rare compared to the risk of severe metabolic illness in a MSUD patient with influenza.
  • sbulcher
    We are hoping that, as advisors for the MSUD Family Support Group, you can offer some advice on an issue that our families are interested in. We have been discussing the issue of the H1N1 vaccine on the MSUD egroup and whether or not those with MSUD should receive it. Specifically, we have been discussing the benefits verus risk of developing Guillian Barre Syndrome after receiving the vaccine. I am interested in your thoughts on this issue and would like to share your recommendations with our internet group. Thanks in advance for your help!
Only registered users can write comments!

!joomlacomment 4.0 Copyright (C) 2009 Compojoom.com . All rights reserved."

Last Updated on Sunday, September 06 2009 23:34
 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

Visit Related Links

Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

Make a Donation

Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

Visit the Forum

MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes


© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

Visit us on Facebook

Footer Logo