Second Annual Chicago Fundraiser A Success PDF Print E-mail
Written by Karen Dolins   
Friends and family gathered at the Dana Hotel and Spa in downtown Chicago on Saturday evening March 12th. The mood was festive, enhanced by the Roxx Box Band and food provided by Gene Kornota and Tony Klok of the Dana Hotel. Aided by a major donation by Dr. Lisa Ring, we cleared almost $12,000 after expenses. Vitaflo and Cambrooke Foods also sponsored the event.

It was great to see MSUD families old and new along with friends and family who came to support our children. Hannah Dolins (17 classic) and Mackenzie O’Brien (13 classic) helped MC the raffle and silent auction.

Many thanks to Barbara Mudrick (mom of Dylan 3 years old, 2 years post-transplant) and my sister-in-law Karen Dolins (yes, we have the same name) who worked tirelessly to bring in donations and raffle items along with planning the event.

I was thrilled to have successfully bid on a quilt handmade by Wayne Brubacher’s mother for her grandson, Joyce and Wayne’s son Monte. Monte was a MSUD pioneer, the first in the world to be identified with MSUD through a state newborn screening test 12 days after his birth in 1965. Sadly, Monte died at the age of 9 from cerebral edema. Had he lived, he would have been 46 years old on March 12th, the day of our fundraiser. What was learned from his short stay on earth has helped improve the treatment of others with this disorder. Joyce and Wayne donated the quilt in the hope that the money raised will go towards research to help further improve treatment for the many facing the challenges of living with MSUD today.

Putting on the fundraiser was, I can’t lie, a lot of work. The payback, though, was enormous and we got back much more than we put in. We are gratified to know that our work is helping to sponsor research into MSUD. We urge any of you who are considering putting together a fundraiser to take the plunge. You’ll find it gratifying as well, as family and friends come together to help support our cause.
Comments (0)
Only registered users can write comments!

!joomlacomment 4.0 Copyright (C) 2009 Compojoom.com . All rights reserved."


Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

Visit Related Links

Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

Make a Donation

Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

Visit the Forum

MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes

© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

Stay Connected!
Footer Logo