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Total 9 results found. Tag: MSUD Management
Pocket-sized comprehensive food list for patients with Maple Syrup Urine Disease. This self-explanatory book on the Leucine (LEU) Exchange System c...
An aid for parents and interested lay persons in the understanding of medical and related terms encountered during care of children with Maple Syrup U...
This article is dedicated to discussing the H1N1 (Swine Flu) that's going around globally. Unfortunately there are no known information about this vir...
Urine for DNPH testing: To obtain a urine specimen from an infants diaper, put several cotton balls or sterile gauzes around the child's penis or vag...
On July 29, 2009, MSUD families and patients of the Clinic for Special Children came from all over central Pennsylvania for a day of nutrition educa...
For several years, We have heard about Dr.Brendan Lee’s study for the possible use of Phenylbutyrate or Buphenyl in MSUD. He has spoken about it at ...
Thiamin is a vitamin (B1) found in a variety of foods including meat, legumes, and whole, fortified and enriched grain products. Thiamin’s main role...
Lifelong medical nutrition therapy (MNT) is a key part of medical therapy for many inherited amino and organic acidopathies. But there is a lack ...
Dr. Wilson has worked in the field of gene therapy for the past 35 years. He readily accepted the invitation to join our conference as he felt it...

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Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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