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Total 10 results found. Tag: Outreach
Anna, the mother of a little Russian girl with MSUD, with whom I had been in contact (see article by Anna, MSUD in Russia, in this issue), sent me an ...
The first MSUD patient in the Philippines was diagnosed in 1983 at the Philippine Children’s Medical Center, a government specialty tertiary hospita...
The Metabolism Service at Boston’s Floating Hospital for Children has launched the METABOLISM OUTREACH SERVICE This innovative program represents t...
Facebook, the social networking website, allows members an opportunity to link their friends, and potentially all of Facebook, to a cause or organizat...
Luis & Ivonni with son, Mario At the end of January Wayne and I, along with another couple, left for Central America. Our main objective was to visi...
More than 60 countries around the world participated in Rare Disease Day last year, and the number is expected to be even greater in 2013. Rare Diseas...
A  survey to help direct the Genetic Metabolic Dietitians International (GMDI) to provide resources to accompany its Nutrition Management Guideline...
My husband, Dave, and I decided to take a vacation to Costa Rica. Like Wayne and Joyce Brubacher, we like to meet MSUD families from other states or c...
There are a variety of ongoing issues that face the MSUD and greater rare disease community. While we push forward to improve the lives of those ...
If your child has been diagnosed with MSUD, Social Security may be able to help with the costs of treatment. The process may seem daunting, but it ...

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Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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