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Total 115 results found. Tag: Sharing Section
William L. Nyhan, M.D., Ph. D. University of California San Diego Department of Pediatrics Острый метаболический дисбалан...
An aid for parents and interested lay persons in the understanding of medical and related terms encountered during care of children with Maple Syrup U...
The following protocol is given to the parents of MSUD patients who are followed at Children's Hospital of Philadelphia, Philadelphia, PA, U.S.A., as ...
Friends and family gathered at the Dana Hotel and Spa in downtown Chicago on Saturday evening March 12th. The mood was festive, enhanced by the Roxx ...
Shayla had an MRI taken at the University of Michigan Medical Center on Jan. 14, 1993 for the purpose of research. Her doctor, Dr. Richard Allen, repo...
With permission from Nicky Guthrie, I am reprinting most of a letter she sent to me. Nicky and her family live in Scotland; thousands of miles in dist...
Sandy Bulcher, Ohio Last month was a trying, yet educational time for our family. Jordan our 4¸ year old son with MSUD was sick from a viral infecti...
After listening to Christine Trahms, the dietitian who spoke at this summer's Symposium, I became motivated to include Jordan (age 5) more in the mana...
I am writing to tell you that I enjoyed myself at the Symposium. I found the panel especially interesting when I was chosen to participate on the pane...
I would like to say how particularly interesting I found reading "Brock's Story" in the Family History section of the last issue of the Newsletter. Ou...
Presented by Helen Berry, M.D. - Cincinnati, Ohio In MSUD, there is a metabolic block at the second step of the metabolic process. Babies start out O...
The symposium was an interesting meeting for us. We did not realize there are so many families with MSUD children. Making new friends and meeting old ...
Presented by Neil Buist, M.D. - Portland, Oregon There are 130 metabolic diseases treated in Oregon. Oregon was the first State to set up screening f...
I have often wondered if I was the only MSUD parent who many times had to actually take my child's face in my hands and talk up close to him to get hi...
I was feeling fortunate that Jordan hadn't been exposed to chicken pox. About that time big brother Tyler broke out with them. He was very sick, inclu...
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