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MSUD Contacts Print E-mail
If you still have questions about MSUD after reviewing the information on this website, contact the appropriate person on this page.


Resource Persons

Medical Advisors

Nutritional Advisors

For organizational information, printed material or addition to our mailing list:

Sandy Bulcher, Vice President
Powell, Ohio
740-972-5619
sandybulcher@gmail.com


For donations:

Dave Bulcher, Treasurer
Powell, Ohio
740-972-5618
davebulcher@gmail.com


For legislative & educational issues:

Marcia Hubbard
Corresponding Secretary
Cedar Hill, Missouri
314-277-8168
secretary@msud-support.org


Advocacy:

Jordann Coleman
Advocacy Chair
Concord, CA
925-349-4601
coleman.jordann@gmail.com


For inquiries in Spanish:

Adriana Carbajel (MSUD parent)
adrianamc2014@yahoo.com
480-278-4713

Vanessa Funes (MSUD adult)
vfunes112887@gmail.com
508-654-2644

Please join the Spanish speaking MSUD Family Support Group by emailing the eGroup at msudenespanol@yahoo.com


For newsletter submissions:

Karen Dolins
, EdD, RD
Newsletter Editor
Scarsdale, New York
914-723-5458
karen.dolins@yahoo.com
Holmes Morton, M.D.
Founding Pediatrician
Central Pennsylvania Clinic, A Medical Home for Special Children & Adults
PO Box 5806
4527 East Main Street
Suite E
Belleville, PA 17004

Melissa Wasserstein, MD
Chief, Division of Pediatric Genetic Medicine
Children’s Hospital at Montefiore
Associate Professor Albert Einstein College of Medicine
Bronx, NY
718-741-2318


Susan C. Winter
, MD
Dir., Med. Genetics/Metabolism
Valley Children's Hospital
9300 Valley Children's Place
Madera, CA 93638
559-353-6400
Fax: 559-353-7213
winter2571@aol.com


Neil R. M. Buist
, MD
Professor Emeritus
Pediatrics and Medical Genetics
Oregon Health & Science University
buistnrm@aol.com

Rani Singh, Ph.D., R.D.
Emory University
Div. of Medical Genetics
2040 Ridgewood Dr.
Atlanta, GA 30322
404-778-8519
Fax: 404-778-8562


Sandy vanCalcar, PhD, RD
Child Development & Rehabilitation Center
Oregon Health and Science University
3181 SW Sam Jackson Rd
Portland, OR 97239
503-494-5500
vancalca@ohsu.edu

MSUD Family Support Group Board

President
Ivan Martin, PA

Vice President
Sandy Bulcher, OH

Treasurer
Dave Bulcher, OH

Secretary
Karen R. Dolins, NY
Ed Fischler, FL
Jennifer Saunders, AZ
Herb Foster, MA


Last Updated on Tuesday, August 01 2017 22:56
 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

Visit Related Links

Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

Make a Donation

Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

Visit the Forum

MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes


© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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