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If you still have questions about MSUD after reviewing the information on this website, contact the appropriate person on this page.


Resource Persons

   

Medical Advisors

   

Nutritional Advisors

For organizational information, printed material or addition to our mailing list:

Sandy Bulcher, Vice President
Powell, Ohio
740-972-5619
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For donations:

Dave Bulcher, Treasurer
Powell, Ohio
740-972-5618
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For legislative & educational issues:

Marcia Hubbard
Corresponding Secretary
Cedar Hill, Missouri
314-277-8168
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Advocacy:

Jordann Coleman
Advocacy Chair
Concord, CA
925-349-4601
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For inquiries in Spanish:

Vanessa Funes (MSUD adult)
This email address is being protected from spambots. You need JavaScript enabled to view it.
508-596-0672

Please join the Spanish speaking MSUD Family Support Group by emailing the eGroup at This email address is being protected from spambots. You need JavaScript enabled to view it.

For newsletter submissions:

Karen Dolins, EdD, RD
Newsletter Editor
Scarsdale, New York
914-723-5458
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Holmes Morton, M.D.
Founding Pediatrician
Central Pennsylvania Clinic, A Medical Home for Special Children & Adults
PO Box 5806
4527 East Main Street
Suite E
Belleville, PA 17004

Melissa Wasserstein, MD
Chief, Division of Pediatric Genetic Medicine
Children’s Hospital at Montefiore
Associate Professor Albert Einstein College of Medicine
Bronx, NY
718-741-2318

Rani Singh, Ph.D., R.D.
Emory University
Div. of Medical Genetics
2040 Ridgewood Dr.
Atlanta, GA 30322
404-778-8519
Fax: 404-778-8562

Sandy vanCalcar, PhD, RD
Child Development & Rehabilitation Center
Oregon Health and Science University
3181 SW Sam Jackson Rd
Portland, OR 97239
503-494-5500
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MSUD Family Support Group Board

President
Ivan Martin, PA

Vice President
Sandy Bulcher, OH

Treasurer
Dave Bulcher, OH

Secretary
Karen R. Dolins, NY
Ed Fischler, VA
Jennifer Saunders, AZ
Herb Foster, MA

In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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A Child's Life

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