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Volume 27-1
Spring, 2010

Inside this issue:
  • New Treatment, Dr. Lee
  • Medical Foods, Sandy Bulcher
  • 2010 Symposium
  • Decision to Transplant
  • Message from the Editor
  • Website, Eddy Wang
  • MSUD Family Scrapbook
  • Diet Wise
  • Genetic Alliance
  • Tryst With Destiny
  • Mouse Model Update, Dr.Hutson
  • Contacts

Download this issue (pdf, 1.68mb)
Title Filter     Display # 
# Article Title Author Hits
1 Our Family Scrapbook Administrator 23783
2 Cambrooke Foods – Winter 2010 Administrator 15407
3 Research challenges in central nervous system manifestations of inborn errors of metabolism Administrator 27817
4 Genetic Alliance Administrator 23247
5 A Family's Story - Marlon Monica Falconer 25497
6 Update on our Work with a Mouse Model for Understanding MSUD Dr. Susan Hutson 16353
7 Our Tryst with Destiny Prashant Verma 28678
8 MSUD-SUPPORT.ORG Eddy Wang 22823
9 A Few Words From the Editor Karen Dolins, EdD, RD, CDN 8248
10 Making the Decision to Transplant: Our Family's Perspective Sheryl Leinbach 20602
11 Medical Foods Equity Act Sandy Bulcher, RN Director, MSUD Family Support Group 25124
12 Development of new treatment for some forms of Maple Syrup Urine Disease Brendan Lee, M.D., Ph.D. 17990
 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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