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Volume 27-1
Spring, 2010

Inside this issue:
  • New Treatment, Dr. Lee
  • Medical Foods, Sandy Bulcher
  • 2010 Symposium
  • Decision to Transplant
  • Message from the Editor
  • Website, Eddy Wang
  • MSUD Family Scrapbook
  • Diet Wise
  • Genetic Alliance
  • Tryst With Destiny
  • Mouse Model Update, Dr.Hutson
  • Contacts

Download this issue (pdf, 1.68mb)
Title Filter     Display # 
# Article Title Author Hits
1 Our Family Scrapbook Administrator 24270
2 Cambrooke Foods – Winter 2010 Administrator 15909
3 Research challenges in central nervous system manifestations of inborn errors of metabolism Administrator 28246
4 Genetic Alliance Administrator 23812
5 A Family's Story - Marlon Monica Falconer 26071
6 Update on our Work with a Mouse Model for Understanding MSUD Dr. Susan Hutson 16812
7 Our Tryst with Destiny Prashant Verma 29226
8 MSUD-SUPPORT.ORG Eddy Wang 23249
9 A Few Words From the Editor Karen Dolins, EdD, RD, CDN 8602
10 Making the Decision to Transplant: Our Family's Perspective Sheryl Leinbach 21323
11 Medical Foods Equity Act Sandy Bulcher, RN Director, MSUD Family Support Group 26156
12 Development of new treatment for some forms of Maple Syrup Urine Disease Brendan Lee, M.D., Ph.D. 18870
 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes


© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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