Volume 28-2
Fall, 2010

Inside this issue:
  • Symposium Reflections
  • 2010 Symposium
  • Article, Dr. Dianne Frazier
  • Family Story, Ruby Maree
  • Dietary Treatment of MSUD
  • Article, Randi Zinberg
  • Auction for Strasburg Clinic
  • Editor; Formula Crisis
  • Diet Wise
  • Note from John Parker
  • Dr. Brendan Lee, Update
  • Leanna’s Pregnancy
  • Advocating for Better Lives
  • Article, Dr. Sandy van Calcar
  • Article, Christina Sclarrotta
  • Contacts

Download this issue (pdf, 1.26mb)
Title Filter     Display # 
# Article Title Author Hits
1 My Child Doesn’t Have PKU or an “Allied Health Disorder” – So Why Do I Keep Hearing About Both? Christina Sciarrotta – President, PKU Organization of Illinois 1406
2 MSUD and Pregnancy: The Importance of Dietary Treatment Sandy van Calcar PhD, RD 5239
3 Advocating for Better Lives Kelly McDonald 1486
4 The Bulchers Visit France Sandy Bulcher 1495
5 Leanna Peters’ Second Pregnancy Mary Ann Peters, Leanna’s mother 1542
6 Research Update: Treatment of MSUD with Phenylbutyrate Brendan Lee, M.D., Ph.D., Professor, Department of Molecular and Human Genetics, Baylor College of Medicine and Investigator, Howard Hughes Medical Institute 1566
7 Formula Crisis in Costa Rica Rebecca Kropf 1611
8 A Few Words From the Editor Karen Dolan, EdD, RD, CDN, Newsletter Editor 1489
9 Genetic Counseling and MSUD Randi Zinberg, MS,CGC and Louise Bier, Graduate Student Mt. Sinai School of Medicine 6374
10 Ruby Maree Kirwan - 1 Year Old Colin Kirwan 2438
11 Evidence-based Treatment Plans for MSUD Dianne M. Frazier, PhD, MPH, RD 1798
12 2010 MSUD Symposium Sandy Bulcher 1661
13 Symposium Reflections Barbara Mudrick 1381

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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