Volume 31-1
Spring 2013
Title Filter     Display # 
# Article Title Author Hits
1 Review of Our Trip to Houston For the Buphenyl Study Sandy Bulcher 30386
2 MSUD and Carnitine Dr.Susan Winter 13267
3 Rare Disease Day 2013 Campaign is underway! Administrator 8488
4 A Few Words From The Editor Karen Dolins, EdD, RD, CDN 5665
5 A Personal Story - Hootan Heydarian Shohreh Heydrain Bonyadi 5462
6 Personal Story - My Recent Surgery Sharlene Balinsky 11458
7 Support Group Funds MSUD Nutrition Management Guidelines Sandy Bulcher 8784
8 New Clinical Center Opens in Miami Administrator 6929
9 Orphan Drug ACT Administrator 4512
10 Research Roundup Administrator 4618
11 Our Visit to Dr. Downes’ Lab Karen Dolins 4210

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes

© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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