Volume 31-2
Fall, 2013

Inside this issue:
  • Kayla
  • David
  • Immune Function
  • Tissue Transplantation
  • Dietary Adherence
  • Buphenyl Follow-up
  • Body Mass Index
  • Cognitive Functioning
  • Genesinlife.org
  • DietWise
  • Management Survey
  • MSUD Family in Costa Rica
  • NBSConnect.org, Milestones
  • Thiamine Responsive
  • Contacts

Download this issue (pdf, 9mb)
Title Filter     Display # 
# Article Title Author Hits
1 Anna Elizabeth Moyer Administrator 12845
2 A Silver Lining... David Fischler 10587
3 Identifying and treating cognitive functioning deficits Administrator 10384
4 New Website: Genetics and Health Administrator 12248
5 The Bulchers visit an MSUD family in Costa Rica Sandy Bulcher 13385
6 Jordan Bulcher’s Experience with Dr. Lee’s Buphenyl Study Follow up by Sandy Bulcher 13793
7 Dietary Adherence in MSUD Anita MacDonald 15781
8 New Research - Cognitive Functioning Post-Transplant Administrator 13715
9 Thiamin-Responsive Maple Syrup Urine Disease Brenda Abdulahad, Nutrition Student 17083
10 MSUD Management Survey Dianne Frazier 4058
11 Do people with Inborn Errors of Metabolism (IEM) have normal immune function? Peter J. McGuire MS, MD 8414
12 Introducing NBS-MSUD Connect! NBSCONNECT.ORG 12259
13 Body mass index in adult patients with diet-treated phenylketonuria Administrator 4106

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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