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Volume 33-2
Fall/Winter, 2015

Inside this issue:
  • G-Tube
  • Food List
  • Editor’s Note
  • Reading List
  • Abbott Conference
  • Financial Assistance
  • Tia’s Story
  • Johnny Bricker
  • MSUD In Galicia
  • President’s Desk
  • Home Monitoring
  • Funded Projects
  • Zebrafish
  • Diet Wise
  • Contacts

Download this issue (pdf, 1.4mb)
Title Filter     Display # 
# Article Title Author Hits
1 Zebrafish Research Continues Administrator 2047
2 Projects Funded by the MSUD Family Support Group Sandy Bulcher, VP MSUD Family Support Group 2190
3 Home Monitoring of Branched Chain Amino Acids (BCAA) Blood Concentrations Patricia Hall, PhD, FACMG; Rani H Singh, PhD, RD, LD. Emory University, Department of Human Genetics 2039
4 Cambrooke Therapeutics Katie Haley 2302
5 From the President’s Desk Ivan Martin 2489
6 Cerebral Oedema, Blood–Brain Barrier Breakdown Karen Dolin 1583
7 MSUD IN GALICIA, THE NORTH-WEST REGION OF SPAIN Dra María L. Couce, Dra María José de Castro 1965
8 Johnny Bricker: Our MSUD CF (Cystic Fibrosis) Warrior Ashley Bricker, Mom 2268
9 Tia’s Tale - 22 months old Vaishnavi Vaidya (Tia’s mother), Columbus, Ohio 2134
10 Financial Assistance Available to Attend the 2016 MSUD Symposium Administrator 2938
11 Making the Decision about a Gastrostomy Tube (G-Tube) Heather Bausell, RD, LDN - Metabolic Nutritionist, Ann & Robert H. Lurie Children’s Hospital of Chicago 1925
12 Abbott Nutrition Metabolic Conference Sandy Bulcher, VP, MSUD Family Support Group 1195
13 Did you know there was a fiction book written with references to MSUD? Sandy Bulcher, mom of Jordan, age 25, Classic MSUD 1499
14 Introducing NEW infant formula for MSUD! Administrator 1336
15 EDITOR’S NOTE - Fall 2015 Karen Dolins 1129
16 ON-LINE FOOD LIST LEUCINE AND PROTEIN CONTENT OF FOOD Dianne Frazier 1256
 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes


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The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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