Volume 34-1
Annual Issue 2016

Inside this issue:
  • MSUD Symposium 2016
  • Member Survey
  • Message from Editor
  • Chairman’s desk
  • Announcements
  • New Board Members
  • Diet App
  • Gene Replacement
  • Diet on a Dime
  • Professional Journal
  • Advocacy Update
  • China
  • Dietitians Int’l
  • MSUD History
  • Thank You
  • Metabolism
  • Acer Therapeutics
  • Amber Raye
  • Reading List
  • Jennie
  • Social Security
  • Diet Wise
  • Contact Us

Download this issue (pdf, 1.1mb)
Title Filter     Display # 
# Article Title Author Hits
1 MSUD Diet on a Dime Julie McClure, RD 1647
2 Maple Syrup Urine Disease & Social Security Benefits Bryan Mac Murray, Outreach Specialist, Social Security Disability Help 2304
3 Our Daughter Jennie Betty and Dirk Verbeek 1640
4 READING LIST - No Longer Not Allowed - $15 Amy Gingrich 1261
5 Amber Raye Amber Raye 1555
6 Acer Therapeutics Continues Phenylbutyrate Research Robert D. Steiner, MD Chief Medical Offi cer, Acer Therapeutics bsteiner@acertx.com 715-650-3030 1499
7 Metabolism, Infection and Immunity in Inborn Errors of Metabolism Peter J. McGuire, MS, MD National Human Genome Research Institute (NHGRI) National Institutes of Health, Summary by Karen Dolins 1614
8 Thank You Administrator 1299
9 Dr. Holmes Morton MSUD 1986-2016: A Sense of Progress Summarized by Karen Dolins 1156
10 Genetic & Metabolic Dietitians International Meeting Karen Dolins 835
11 Enhancing Pediatricians Awareness of MSUD Infant Health in China - What Can We Do? Xin-lin Hou, MD,PhD, Pediatric Department, First Hospital, Peking University, Beijing, China with Karen Dolins 947
12 Advocacy Update Jordann Coleman, MSUD Family Support Group Advocacy Chair 1140
14 Gene Replacement and Genome Editing in the Treatment of Liver Metabolic Diseases - Are We There Yet? James M. Wilson, MD, PhD Director, Orphan Disease Center Director, Gene Therapy Program Medicine and Pediatrics Perelman School of Medicine University of Pennsylvania Summarized by Sarah Dworcan 1292
15 The Metabolic Diet App Suite: MSUD Diet Tracking on the Go! Keiko Ueda MPH RD, Gloria Ho, Roderick Houben, Jeff rey Joa, Alette Giezen RD, Barbara Cheng RD, Clara van Karnebeek, MD, PhD, FCCMG 1194
16 Introducing the New Board Members of the MSUD Family Support Group Administrator 1014
17 From the Chairman’s desk Ivan Martin 901
18 A Message from the Editor Karen Dolins 998
19 MSUD Family Support Group Member Survey Karen Dolins 964
20 MSUD SYMPOSIUM 2016 Sandy Bulcher, VP MSUD Family Support Group and Symposium Coordinator 1097

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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