|MSUD Family Support Group Member Survey|
|Written by Karen Dolins|
The MSUD Family Support Group was formed in 1982 in response to a need among aff ected families for support and information. It is dedicated to:
To get your input on how this changing environment might aff ect your needs, we conducted a member survey electronically. The aim of the survey was to help us prioritize our initiatives.
We received responses from 116 individuals. Here are the results:
How important do you feel each of the following areas is for the MSUD Family Support Group to be involved in?
How well do you feel the support group is meeting your needs in each of these areas
Do you read the newsletter and how helpful do you find it?
89% responded that they read the newsletter and 94% reported that they fi nd it helpful or very helpful.
If you/your child has been transplanted, do you still fi nd value in belonging to the support group?
64 individuals responded to this question. Of those, 61% responded that they do fi nd value in continuing to be a part of the support group.
Have you attended a symposium? If not, why?
Of those who have not attended a symposium, 56% reported expense and 33% reported time constraints. Many commented on the difficulties of travel, especially from other countries.
We asked for suggestions for how we can strengthen our organization and received 36 responses.
The board is carefully reviewing all of these responses.
Remember, we need an active membership to be able to follow through on important initiatives. If you feel that something is important, please consider volunteering to help.
|Last Updated on Friday, September 23 2016 09:05|