Volume 35-1
Online Issue 2017

Inside this issue:
  • Global Genes
  • Message from Editor
  • Rare Disease Week
  • Acer-001
  • Save the Date
  • Neurocognitive
  • New Born Screening
  • PKU Perspective
  • Maxamaid/Milupa
  • Contact

Download this issue (pdf, 2.2mb)
Title Filter     Display # 
# Article Title Author Hits
1 Attn: Patients using Maxamaid® and Milupa products Nutricia 930
3 PKU Perspectives Offers 5% Discount on Country Sunrise PKU Perspectives 722
4 Neurocognitive profiles in MSUD school-age patients J Inherit Metab Dis. 1249
5 Acer Therapeutics: working diligently to advance ACER-001 Robert Steiner, M.D. Chief Medical Officer Acer Therapeutics 893
6 Rare Disease Week 2017 Karen Dolins 925
7 A Message from the Editor Karen Dolins 689
8 MSUD Family Support Group joins the Global Genes® RARE Foundation Alliance Jordann Coleman, Advocacy Chairperson 768

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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