|A Message from the Editor|
|Written by Karen Dolins|
We are publishing our newsletter electronically for
the first time!
Many organizations have moved away from print newsletters due to the expense involved in printing and mailing. As mentioned in earlier issues, we have elected to continue with a print newsletter for Summer/Fall while using our eblast list to publish a Winter/Spring newsletter electronically. We are also using our eblast list to communicate with you on timely issues so you can expect to hear from us more frequently than in the past.
This enewsletter contains research updates, information about our next Symposium in June 2018, and information about rare disease advocacy and how you can help.