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A Message from the Editor PDF Print E-mail
Written by Karen Dolins   
We are publishing our newsletter electronically for the first time!

Many organizations have moved away from print newsletters due to the expense involved in printing and mailing. As mentioned in earlier issues, we have elected to continue with a print newsletter for Summer/Fall while using our eblast list to publish a Winter/Spring newsletter electronically. We are also using our eblast list to communicate with you on timely issues so you can expect to hear from us more frequently than in the past.

This enewsletter contains research updates, information about our next Symposium in June 2018, and information about rare disease advocacy and how you can help.

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Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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