This issue of our newsletter focuses on the Symposium, held June 15-17 in Dublin, Ohio and hosted by the Bulchers. Many thanks to Sandy and Dave Bulcher for all their hard work. Like the newsletter, the Symposium provides a link for those of us who often feel alone. We relish the opportunity to meet each other, for our children to connect with others going through similar challenges, and to become energized by learning about all of the advances being made in the treatment of MSUD. Without the Bulchers, this would not have happened.
As you will see by reading the articles in this newsletter, we learned about promising advances in both gene therapy and liver transplantation. Sessions on dietary management and self esteem provided us with many of the coping skills that we need on a daily basis.
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