Volume 23-2
Summer/Fall, 2006

This issue of our newsletter focuses on the Symposium, held June 15-17 in Dublin, Ohio and hosted by the Bulchers. Many thanks to Sandy and Dave Bulcher for all their hard work. Like the newsletter, the Symposium provides a link for those of us who often feel alone. We relish the opportunity to meet each other, for our children to connect with others going through similar challenges, and to become energized by learning about all of the advances being made in the treatment of MSUD. Without the Bulchers, this would not have happened.

As you will see by reading the articles in this newsletter, we learned about promising advances in both gene therapy and liver transplantation. Sessions on dietary management and self esteem provided us with many of the coping skills that we need on a daily basis.

Download this issue (pdf, 21.9mb)

Title Filter     Display # 
# Article Title Author Hits
1 A Letter of Appreciation Robin and Libby Stone 14922
2 MSUD Transplant Symposium Joyce Brubacher 14385
3 Jimena Gatica Eduardo Gatica 11471
4 Family History - Connor Patrick McMahon McMahon 10524
5 Essay by David Fischler David Fischler 11979
6 Improving Self-Esteem Darlene Honigford, LS 12188
7 Elsis Santos Quinceanera Zulma Santos 15415
8 Nutritional Management of MSUD Elaina Jurecki, MS, RD 23739
9 Effects Of MSUD On Learning And Behavior Hilary Feldman, PhD 19771
10 MSUD Symposium 2006 Sandy Bulcher 10438
11 Curing MSUD: Update on the Mouse Project Gregg Homanics, PhD 15630
12 Liver Transplantation in MSUD: Protocol and Clinical Experience Including Domino Transplantation George Mazariegos, MD 17461

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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© 2017 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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