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Volume 24-1
Winter/Spring, 2007

The idea for an issue on MSUD Around the World came in part from the many emails the group receives from outside of the United States and the recognition that many readers of our newsletter are indeed from all over this earth. Our world has gotten smaller. Communication is easier and more and more people travel throughout the globe. Our hope is that this issue of the newsletter will help those in countries with less experience identifying and treating MSUD, and also provide information for families considering international travel.

Preparing this newsletter has truly been an eye-opening experience for me as I came face-to-face with the enormous disparities, not only between nations but between regions, in the identification and treatment of MSUD. While some of us live in places where the disease is rapidly identified in those critical first days through newborn screening, others go through the agony of not knowing what is ailing their child until significant impairment has occurred. While some of us receive regular shipments of the formulas that keep our children alive and healthy, others have limited access at best. It is relatively few of us who are secure in the knowledge that when our children get sick their blood amino acid levels will be monitored and treatment will proceed accordingly. For too many of us, treatment occurs blindly without this knowledge.

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Title Filter     Display # 
# Article Title Author Hits
1 Who Are We? Sandy Bulcher 15182
2 MSUD in Philippines - Alrey Alcantara Joyce Brubacher 11438
3 MSUD in New Zealand - Ekta Kapadia Joyce Brubacher 8770
4 MSUD in Israel - Noy Widezki Joyce Brubacher 8804
5 MSUD in India Joyce Brubacher 16998
6 MSUD in Honduras - Mario Ricardo Maldonado Espinoza Joyce Brubacher 9612
7 MSUD Treatment in Brazil Patricia Ashton-Prolla MD 12930
8 MSUD in Brazil - Henrique Bramante Luis Bramante 8711
9 MSUD in Argentina - Jimena Gatica Eduardo Gatica 8350
 

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Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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