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Volume 24-2
Fall, 2007

This issue of the newsletter includes an update on medical therapy and encouraging news on genetic research. Past issues have explored liver transplant as an option (see Summer 2006 for the article written by Dr. George Mazareigos for more information on liver transplantation). Our organization does not take a position on whether liver transplantation or genetic engineering is in the best interest of our population. This is a very emotional issue for most of us, and a personal one, and we must continue to respect one another’s opinions regardless of whether we agree with them.

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Title Filter     Display # 
# Article Title Author Hits
1 Mother's story (name reserved) Administrator 9832
2 Understanding the Effects of MSUD and Improving Treatment Options: The Work Continues Dr. Susan Hutson 14390
3 Rachel and Seth Webb Sonya Webb 16864
4 Grupo de Charla y Apoyo Sobre MSUD - Un Foro Multinacional Monica Falconer 10236
5 Spanish MSUD Chat and Support Group - A Multinational Forum Monica Falconer 9228
6 Egor’s Short Life in Russia Joyce Brubacher 11503
7 Amanda Andraos Amanda Andraos 10399
8 MSUD IN RUSSIA Anna Kursaeva 11682
9 New Treatments for Metabolic Disorders: What about MSUD? Paul M. Fernhoff, MD, FAAP, FACMG 17531
10 Editor's Message Karen Dolins, EdD, RD, CDN 15207
11 MSUD Board Members Visit Dr. Susan Hutson Sandy Bulcher 13765
 

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Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

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DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

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Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

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MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

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MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

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Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

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The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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