On the last Sunday in October, Jeff complained of severe pain that ended up being a cecal volvulus, which is very rare. It is a serious medical issue involving the intestines where the cecum, the first portion of the large intestine, loops around itself and creates an obstruction. Ater 2 hours in the ocal emergency room trying to find a service to take him to Lancaster General, we had to drive him urselves (about a 2 hour drive) We were praying the whole time that we didn’t lose him before he could have life-saving surgery. The surgeon here and in Lancaster both agreed that Jeff had hours not days to get the operation. While we were driving him, I knew he was still alive because he was snoring. He had part of his ileum removed, plus the appendix and gallstones taken out and he battled pneumonia while in the hospital and at home. He now has a large scar up his belly. He has healed very nicely and s back to normal - working and volunteering. We are so thankful to Dr. Morton, Dr. Strauss, and Donna rom the Clinic for Special Children for their amazing medical work as well as the very dedicated nurses on the Pediatric floor at Lancaster General. It was funny to have Jeff, who turns 40 on Feb. 17 to be on that floor. He tried to take some of the nurses home. I know we tried our best but we just weren’t as pretty or as nice as the ones on the floor.


The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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