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One of the goals of the MSUD Family Support Group is to increase our presence at meetings of metabolic clinicians. In April of this year, I had the opportunity to be an exhibitor at the Abbott Nutrition Metabolic Conference in San Diego, CA. The conference was held at the beautiful Loews Coronado Bay Resort and there were over 100 professionals, primarily metabolic dieticians, in attendance.

I provided literature about the support group to the attendees and encouraged them to inform their MSUD families about our organization, especially new families. A few professionals did not know that our organization existed and some did not know about our research projects or biennial symposiums. During the conference, I reconnected with the National PKU Alliance representative, Christine Brown, and was updated on the activities and projects of the PKU community.

The speakers and topics were interesting, however networking with the professionals was invaluable. Through networking, I learned many new things, including that MSUD is higher in the African American population and in those from El Salvador than I had realized. Hopefully our organization will be able to better connect with these families in the future.

The MSUD Board is committed to advocating for MSUD at professional meetings and plans to send a representative to one or more meetings each year.



CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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