On June 27, the MSUD Board of Directors met at the Embassy Suites Hotel in Pittsburgh, Pa. The location was chosen for two reasons: it was a central location for travel and also allowed us to check out the hotel and the area restaurants as a possible future symposium location. At this meeting, the Board was re-organized with the following officers either installed or retained: Ivan Martin-President, Sandy Bulcher-Vice President, Dave Bulcher-Treasurer, and Anne Fredericks-Secretary. Joined by board members Amy Jones and Karen Dolins, we focused our discussion on future directions and long range planning for the MSUD Family Support Group. We highlighted the following goals:
- Become more active and more visible in the genetic disease world
- Improve the efficiency of our communication (see Editor’s Note)
- Investigate potential research projects to support
- Investigate the feasibility of helping other countries with a significant MSUD population set up their own support groups
Please contact us if you have any suggestions for the Board and how we could serve you better. I‘m looking forward to seeing you next year at the Symposium.