As I reflect on the Symposium from this past June in Raleigh, North Carolina, I feel the time and eff ort needed to go was well worth it.

The subjects presented were very informative and gave those of us whose lives revolve around MSUD new hope and strength to continue striving for better clinical care and ultimately a cure for MSUD. I believe we are on the verge of some very exciting discoveries in the medical fi eld including gene therapy.

Thanks to the United Services Foundation, we were again able to assist ten families from all over the world with travel expenses to attend the symposium. Some of the families traveling from foreign countries have very poor clinical care facilities;for those families, the Symposium is a very informative and a much needed educational opportunity for them.

The MSUD Board of Directors has reorganized by accepting the resignation of two of its long time members and has added three new members. Thank you Amy Jones and Anne Fredericks for your years of service. We welcome Jennifer Saunders, Edward Fishler and Herbert Foster as our new board members.

During the symposium, Herb Foster presented a giant check to the MSUD Family Support Group from the Scott Foster Foundation. These funds are earmarked specifi cally for medical research. Our hope is that through this generous contribution, we can move closer to our goal of fi nding a cure for MSUD.

Thank you again to all those who were able to attend the symposium.

Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

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NBS-MSUD Connect: Advancing MSUD Research And More


Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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A Child's Life

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