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As I reflect on the Symposium from this past June in Raleigh, North Carolina, I feel the time and eff ort needed to go was well worth it.

The subjects presented were very informative and gave those of us whose lives revolve around MSUD new hope and strength to continue striving for better clinical care and ultimately a cure for MSUD. I believe we are on the verge of some very exciting discoveries in the medical fi eld including gene therapy.

Thanks to the United Services Foundation, we were again able to assist ten families from all over the world with travel expenses to attend the symposium. Some of the families traveling from foreign countries have very poor clinical care facilities;for those families, the Symposium is a very informative and a much needed educational opportunity for them.

The MSUD Board of Directors has reorganized by accepting the resignation of two of its long time members and has added three new members. Thank you Amy Jones and Anne Fredericks for your years of service. We welcome Jennifer Saunders, Edward Fishler and Herbert Foster as our new board members.

During the symposium, Herb Foster presented a giant check to the MSUD Family Support Group from the Scott Foster Foundation. These funds are earmarked specifi cally for medical research. Our hope is that through this generous contribution, we can move closer to our goal of fi nding a cure for MSUD.

Thank you again to all those who were able to attend the symposium.





Volume 35-1
23 April 2017

A Message from the Editor

Volume 35-1
23 April 2017

NEWBORN SCREENING LEGISLATION

Transform

A Child's Life

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