Our sincere gratitude to the following sponsors:

  • Charles Hehmeyer (travel expenses)
  • Children’s Hospital of Pittsburgh of UPMC
  • Nutricia North America
  • United Service Foundation (travel expenses)
  • Vitaflo USA
  • Acer Therapeutics (Friday evening ice cream bar)
  • Cambrooke Therapeutics (Low protein foods)

Thanks to all who helped make this happen:

  • Travel arrangements for families - Wayne and Joyce Brubacher
  • Photography/videography - Ed Fischler
  • Travel arrangements for families - Marcia Hubbard
  • Coordinating sponsors/exhibitors - Denise Langosch
  • Organizing children’s activities - Camille Libunao & Eric Erpelo
  • Coordinating low protein menu - Betty Nzau
  • Assisting during general sessions - Melissa Shughrue
  • MSUD website - Eddy Wang
  • Organizing activities for Friday evening social event - Sonya Webb

Thanks to our exhibitors:

  • Acer Therapeutics
  • Cambrooke Therapeutics
  • Children’s Hospital of Pittsburgh of UPMC
  • NBS Connect
  • Nutricia North America
  • Vitaflo USA

Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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A Child's Life

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