Search


Our sincere gratitude to the following sponsors:

  • Charles Hehmeyer (travel expenses)
  • Children’s Hospital of Pittsburgh of UPMC
  • Nutricia North America
  • United Service Foundation (travel expenses)
  • Vitaflo USA
  • Acer Therapeutics (Friday evening ice cream bar)
  • Cambrooke Therapeutics (Low protein foods)


Thanks to all who helped make this happen:

  • Travel arrangements for families - Wayne and Joyce Brubacher
  • Photography/videography - Ed Fischler
  • Travel arrangements for families - Marcia Hubbard
  • Coordinating sponsors/exhibitors - Denise Langosch
  • Organizing children’s activities - Camille Libunao & Eric Erpelo
  • Coordinating low protein menu - Betty Nzau
  • Assisting during general sessions - Melissa Shughrue
  • MSUD website - Eddy Wang
  • Organizing activities for Friday evening social event - Sonya Webb


Thanks to our exhibitors:

  • Acer Therapeutics
  • Cambrooke Therapeutics
  • Children’s Hospital of Pittsburgh of UPMC
  • NBS Connect
  • Nutricia North America
  • Vitaflo USA





Advocacy

As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

Read More

Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

Read More

20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

Read More

From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

Read More

In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

Read More

Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates