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In No Longer Not Allowed, Amy Gingrich shares her story of living with the disease and then undergoing a liver transplant at the age of twenty one in January of 2006 at Pittsburgh Children’s Hospital.

She tells about the hospital stays, the ups and downs of healing, subsequent health issues related to the transplant, and recovery. Gingrich also includes recipes and journal entries from her parents who provided unconditional support.

Signed books can be purchased directly through Amy (Amy Zimmerman Gingrich, 605 South Cedar St, Lititz PA 17543. Phone # 717-341-1383) or at Amazon.com (If purchased from Amazon, she will sign it at the 2018 symposium).



My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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Transform

A Child's Life

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