Our organization joined 108 others in signing a letter
in support of expanded newborn screening in Florida.
While MSUD is now a part of newborn screening in
every state, many other rare diseases are not. This
effort, spearheaded by The EveryLife Foundation for
Rare Diseases, aims to support legislation which would
expanding newborn screening in the state of Florida to
include diseases recommended by the state’s Genetics
and Newborn Screening Advisory Council.
CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN
The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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Our organization joined 108 others in signing a letter
in support of expanded newborn screening in Florida.
While MSUD is now a part of newborn screening in
every state, many other rare diseases are not. This
effort, spearheaded by The EveryLife Foundation for
Rare Diseases, aims to support legislation which would
expanding newborn screening in the state of Florida to
include diseases recommended by the state’s Genetics
and Newborn Screening Advisory Council.
