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Our organization joined 108 others in signing a letter in support of expanded newborn screening in Florida. While MSUD is now a part of newborn screening in every state, many other rare diseases are not. This effort, spearheaded by The EveryLife Foundation for Rare Diseases, aims to support legislation which would expanding newborn screening in the state of Florida to include diseases recommended by the state’s Genetics and Newborn Screening Advisory Council.



CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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