Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance. In the case of disease days, information about the disease may be posted on social media, along with other forms of communication, to spread awareness of it.
Soon you will hear about MSUD Awareness Day! I am
working on having June 16th set as MSUD Awareness
Day. This date was selected as it is the birthday of
Cindy Blau, the first person with Classic MSUD known
to the Maple Syrup Urine Disease Family Support
Group to have survived.
For the past few months I have been working on
the legal paperwork to make MSUD Awareness Day
an official day. I am now working on getting two
U.S. Senators, one from each party, to co-sponsor it.
Once they agree to it, it will be official and hopefully
by Jun 16, 2018, you will be hearing “Happy MSUD
MSUD Awareness Day
- Written by Susan Needleman, 27 year old Classic MSUD
- Category: Volume 35-2