Search

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital UPMC by Dr. Kyle Soltys as a treatment option for MSUD. Since surgery, Galen’s health has been excellent! He graduated from Wilmington College with a Bachelor’s degree in Psychology and is currently employed by the Carl Linder YMCA and Cincinnati Recreation Commission as a swim instructor and lifeguard. He has enjoyed swimming in 2 consecutive Transplant Games of America which were held in Houston and Cleveland-he brought home a total of 8 Gold Medals in all his events which included butterfly, breaststroke and freestyle!

This summer, Galen had the privilege of representing the USA at the World Transplant Games in Malaga, Spain! With over 30 countries in attendance and a strong competitor facing Great Britain, he managed to bring home 1 Gold and 4 Silver Medals! What’s more important than the medals is the global support for the success of transplantations and the need to increase awareness of organ donations.

Galen emphasizes how important it is to be a part of the MSUD Family Support Group as well as the Donate Life campaign in order to successfully manage his disorder and belong to a community of others who can relate to his condition. Galen continues to strive in his swimming career in honor of his donor family. Please look for him to represent Indiana in the next Transplant Games to be held in Salt Lake City, Utah August 2018!

Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

Read More

NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

Read More

Advocacy

As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

Read More

In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

Read More

MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

Read More

Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates