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Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital UPMC by Dr. Kyle Soltys as a treatment option for MSUD. Since surgery, Galen’s health has been excellent! He graduated from Wilmington College with a Bachelor’s degree in Psychology and is currently employed by the Carl Linder YMCA and Cincinnati Recreation Commission as a swim instructor and lifeguard. He has enjoyed swimming in 2 consecutive Transplant Games of America which were held in Houston and Cleveland-he brought home a total of 8 Gold Medals in all his events which included butterfly, breaststroke and freestyle!

This summer, Galen had the privilege of representing the USA at the World Transplant Games in Malaga, Spain! With over 30 countries in attendance and a strong competitor facing Great Britain, he managed to bring home 1 Gold and 4 Silver Medals! What’s more important than the medals is the global support for the success of transplantations and the need to increase awareness of organ donations.

Galen emphasizes how important it is to be a part of the MSUD Family Support Group as well as the Donate Life campaign in order to successfully manage his disorder and belong to a community of others who can relate to his condition. Galen continues to strive in his swimming career in honor of his donor family. Please look for him to represent Indiana in the next Transplant Games to be held in Salt Lake City, Utah August 2018!

From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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A Child's Life

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