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Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital UPMC by Dr. Kyle Soltys as a treatment option for MSUD. Since surgery, Galen’s health has been excellent! He graduated from Wilmington College with a Bachelor’s degree in Psychology and is currently employed by the Carl Linder YMCA and Cincinnati Recreation Commission as a swim instructor and lifeguard. He has enjoyed swimming in 2 consecutive Transplant Games of America which were held in Houston and Cleveland-he brought home a total of 8 Gold Medals in all his events which included butterfly, breaststroke and freestyle!

This summer, Galen had the privilege of representing the USA at the World Transplant Games in Malaga, Spain! With over 30 countries in attendance and a strong competitor facing Great Britain, he managed to bring home 1 Gold and 4 Silver Medals! What’s more important than the medals is the global support for the success of transplantations and the need to increase awareness of organ donations.

Galen emphasizes how important it is to be a part of the MSUD Family Support Group as well as the Donate Life campaign in order to successfully manage his disorder and belong to a community of others who can relate to his condition. Galen continues to strive in his swimming career in honor of his donor family. Please look for him to represent Indiana in the next Transplant Games to be held in Salt Lake City, Utah August 2018!

Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

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A Child's Life

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