Hello to my MSUD family! The
power of this family hit home this
summer, when Hannah (Classic
MSUD age 23 years) and I visited
Israel. The trip came about
because Hannah was invited to
stay with Avi and Dikla Starr, who
attended our Symposium last year
with their daughter Tamar (Classic
MSUD age 3 ½ years). She spent 5 weeks with them
and traveled throughout Israel to visit other MSUD
families (see Hannah’s article describing her trip on
page 6). I joined her for the last 11 days. We received
warm welcomes from everyone we met. Perhaps
most poignant, we met a couple from India who
were in the country when their son Krish (classic
MSUD age 4 months) was born. Knowing that
treatment in India is poor, they were able to extend
their visa and hope to get a liver transplant.
In addition to editing the newsletter, I also serve
on the Board as Secretary and have been working
to expand our advocacy efforts. Please read the
articles describing these efforts and learn how you
can help. Also included are research updates and
plans for fundraising, which will enable us to support
promising research projects.
Thank you to Susan Mays, Sarah Dworkan, Jody
Carrington, Hannah Dolins, and Anne Fredericks for
your family stories. Remember, we all enjoy hearing
each other’s stories and important events. Please
don’t hesitate to contact me at karen.dolins@yahoo.
com if you’d like to tell us yours.
Finally, a big thank you to our advertisers Cambrooke
Foods, Vitaflo, and Nutricia for their continued
support.