Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel. The trip came about because Hannah was invited to stay with Avi and Dikla Starr, who attended our Symposium last year with their daughter Tamar (Classic MSUD age 3 ½ years). She spent 5 weeks with them and traveled throughout Israel to visit other MSUD families (see Hannah’s article describing her trip on page 6). I joined her for the last 11 days. We received warm welcomes from everyone we met. Perhaps most poignant, we met a couple from India who were in the country when their son Krish (classic MSUD age 4 months) was born. Knowing that treatment in India is poor, they were able to extend their visa and hope to get a liver transplant.
In addition to editing the newsletter, I also serve
on the Board as Secretary and have been working
to expand our advocacy efforts. Please read the
articles describing these efforts and learn how you
can help. Also included are research updates and
plans for fundraising, which will enable us to support
promising research projects.
Thank you to Susan Mays, Sarah Dworkan, Jody
Carrington, Hannah Dolins, and Anne Fredericks for
your family stories. Remember, we all enjoy hearing
each other’s stories and important events. Please
don’t hesitate to contact me at karen.dolins@yahoo.
com if you’d like to tell us yours.
Finally, a big thank you to our advertisers Cambrooke
Foods, Vitaflo, and Nutricia for their continued
From The Editor
- Written by Karen Dolins