Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years. As a mother of two young adult PKU children (Cameron & Brooke), founder of Cambrooke and longtime board member (24-years) of the New England Connection for PKU and Allied Disorders (NECPAD), Lynn Paolella has always strived to empower the metabolic community to take advantage of Cambrooke’s facility in Ayers, Massachusetts at no charge in an effort to create ‘their own cooking, educational and/or social event’. Cambrooke’s manufacturing facility is equipped with a state of the art test kitchen, dining room & game room, which are highly suitable for social events and meetings. A tour of Cambrooke’s facility along with taste-testing of products is always available.

Local resident Susan Needleman, an adult with Classical MSUD, spearheaded a social meet-up event for individuals with MSUD and their families on August 5th. A group of 10 attendees participated in a low protein cooking workshop which focused on creating numerous delicious baked goods, both sweet and savory, featuring Cambrooke’s newly launched frozen Readi-Dough. Lynn demonstrated many examples of how to use the multipurpose dough and in turn, the group offered suggestions & created their own innovative recipes. Possible uses for this product include focaccia bread, calzones, Stromboli, pot pie pastry, cheesy breadsticks, and fried dough with cinnamon sugar.

MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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A Child's Life

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