Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years. As a mother of two young adult PKU children (Cameron & Brooke), founder of Cambrooke and longtime board member (24-years) of the New England Connection for PKU and Allied Disorders (NECPAD), Lynn Paolella has always strived to empower the metabolic community to take advantage of Cambrooke’s facility in Ayers, Massachusetts at no charge in an effort to create ‘their own cooking, educational and/or social event’. Cambrooke’s manufacturing facility is equipped with a state of the art test kitchen, dining room & game room, which are highly suitable for social events and meetings. A tour of Cambrooke’s facility along with taste-testing of products is always available.

Local resident Susan Needleman, an adult with Classical MSUD, spearheaded a social meet-up event for individuals with MSUD and their families on August 5th. A group of 10 attendees participated in a low protein cooking workshop which focused on creating numerous delicious baked goods, both sweet and savory, featuring Cambrooke’s newly launched frozen Readi-Dough. Lynn demonstrated many examples of how to use the multipurpose dough and in turn, the group offered suggestions & created their own innovative recipes. Possible uses for this product include focaccia bread, calzones, Stromboli, pot pie pastry, cheesy breadsticks, and fried dough with cinnamon sugar.

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

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NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

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Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

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From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

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MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

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The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

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19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

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Change the lives

of MSUD adults and children

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