The Medical Nutrition Equity Act ensures public and private insurance coverage for medically necessary foods when prescribed by a physician. The bill was originally introduced in 2018, during the 115th session of Congress, but never made it to the floor for a vote. The bill was reintroduced into the 116th Congressional session on May 2, 2019 and continues to gather more support. The House Bill (HR2501) currently has 60 co-sponsors (50 Democrats and 10 Republicans) and is led by Representatives Jim McGovern (D-MA) and Jamie Herrera Butler (RWA). The Senate version of the bill is close to being reintroduced in the Senate as Senator Joni Ernst (R-IA) has agreed to be the lead sponsor along with Senator Bob Casey (D-PA).

Your action is needed! Due to the coronavirus pandemic, the Medical Nutrition Equity Act Hill Day scheduled for May 19, 2020 will now be a virtual grassroots campaign. On May 19th, join the MSUD Family Support Group US-based membership by gathering friends & family to contact your Senators and Representatives to ask for their support of the Medical Nutrition Equity Act. Calls, emails, and tweets will be needed to obtain more co-sponsors for this important bill. Check with MSUD Family Support Group website and official Facebook page for more information as the date draws near.

If you are unable to make the virtual Hill Day on May 19th, you can ask your elected officials for support today. Go to to send an autogenerated email to your members of Congress. You can also visit to share why having coverage for medical nutrition is important to you and your family.

We need as many voices as possible to help us pass this bill. Please share with your friends, family & social networks and ask them to contact their Congressional members. Together we can make coverage for medical nutrition a reality!


The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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