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Urine for DNPH testing: To obtain a urine specimen from an infants diaper, put several cotton balls or sterile gauzes around the child's penis or vagina and cover with a 2 to 3 inch piece of plastic wrap. Put on diaper. When wet, squeeze water from cotton balls or gauze to test with DNPH. No more sore bottoms from urine bags.

Medicine for vomiting: Several parents in PA expressed their appreciation for the medicine Zofran (Odansetron) prescribed for vomiting during an illness. The medicine is often used for chemotherapy patients and post surgery patients. It controlled the vomiting in the children with MSUD so they could continue taking their formula and liquids. This is a very expensive prescription drug. If your child vomits easily when sick and often needs to be hospitalized, you may want to ask your doctor about using it.

Toothpaste for finicky children: A mother had problems getting her children to brush their teeth until she discovered Tom's of Maine natural toothpaste with fluoride. It comes in delicious mint, fruit and other flavors including Silly Strawberry for children. It is available in health food stores.

CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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