The Department of Health's Special Kids Network (SKN) is a statewide information service assisting parents, agencies, or anyone in Pennsylvania seeking help with a child who has a chronic or disabling health condition. By calling 1-800-986-4550 from anywhere within Pennsylvania, a caller is automatically routed to the closest of six regional offices throughout the state. Trained telephone counselors respond with information and referrals obtained from a comprehensive, statewide database. The database within each region includes agencies from that region as well as statewide and national agencies providing over 103 distinct services grouped into six broad categories: education/training, healthcare products/services, recreation/ leisure, social service/counseling, support/advocacy, and therapy. There are over 5300 agencies in the SKN database.

The goal of the SKN is to make connections between families of children with special health care needs and providers offering services. The SKN specifically targets children under the age of 21. SKN staff members are available to provide information or make presentations about the Special Kids Network and its related services. To arrange for a presentation or request additional information, please call 1-800-986-4550.


The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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