If you don't have e-mail, you may not know about the Tyler for Life Foundation. This new foundation is a newborn screening awareness organization in Georgia. I am on the board as directors of the Tandem Mass Spectrometry Disorders Division. My job, with the help of others, is to see that the 3.7 million babies born each year in the U.S. get screened with the very effective tandem mass spectrometry technology. Tragically, 2,700 children die each year in the U.S. or are brain damaged because someone did not know they should have a $20 newborn screening test [which includes MSUD]. We plan to work on the international level in a few years.
We can't do it alone. Please contact us to see what you can do to help educate the world and educate your community. The world has GOT to know that newborn screening for many of these disorders EXISTS! You can get newsletters and information by contacting Tyler for Life online or off line.
- Wendy NawnWendy Nawn, MCAD (610) 251-9876
Tera Mize, galactosemia, President (770) 947-3638
Tyler for Life Foundation, Inc.
6340 Holborne Lane
Douglasville, GA 30134-4023