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Emily Talley is a 43 year old adult with MSUD. She has set up a group e-mail account for anyone who would like to use it as a forum for group discussion concerning MSUD support. The group e-mail account is absolutely FREE. It's hosted by egroups.com, and only members can access it. The fact that it is a member only group e-mail account makes it a safe place for people to receive and give support around the issues of MSUD.

For those of you who aren't familiar with group e-mail accounts, here's how they work. When you post a message to the group's e-mail address (This email address is being protected from spambots. You need JavaScript enabled to view it.), your message will automatically be sent to every member in the group. Likewise, when someone responds to a member's e-mail, their reply will automatically be sent to every member in the group.

Group e-mail accounts are a great way for a group of people who share common concerns/interests to have on-line discussions. They allow for very rapid exchange of information between a large number of people.

Emily Talley is the owner/moderator of the MSUD group e-mail account. She can be reached at This email address is being protected from spambots. You need JavaScript enabled to view it.. She will trouble-shoot and fix any technical difficulties that come up (e.g., bounced e-mails, etc.).

To become a member of the MSUD group e-mail account, just send an e-mail to: This email address is being protected from spambots. You need JavaScript enabled to view it.

CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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