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After Symposium 2000, Giovanni Medeiros from Brazil was convinced of the need to have MSUD total parenteral nutrition (TPN) available for the children with MSUD in Brazil. Obtaining this IV solution when an MSUD child is hospitalized is often difficult in the United States and has been nearly impossible in many other countries. Giovanni was determined to find a ready source of the MSUD IV solution to use in TPN for MSUD. MSUD TPN is used to quickly lower the branched chain amino acids (BCAAs) in sick children who cannot take their formula by mouth.

Giovanni located a source in Germany from which doctors can order the solution. The Pharmacy of the Municipal Hospital Munich-Bogenhausen, Englschalkinger Str. 77, 81925 Munchen, stocks an MSUD 7.6 % solution free of the BCAAs. The solution is produced as an infusion with a shelf life of 3 years when stored at 8oC. Further compounds can be added to make the MSUD TPN. The pharmacy may be contacted by e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it., fax: 49/89/92702316, or phone: 49/89/9270-2320. Two additional companies have expressed interest in making an internationally available amino acid solution.  One company is in the United States.

CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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