MSUD Symposium 2006 was held in Dublin, Ohio at the Embassy Suites on June 15-17th.

Approximately 250 people attended the three day event. MSUD families from 20 of the 50 United States were present. In
addition, MSUD families and professionals from Canada, Brazil, Argentina, India, Honduras, Philippines, Costa Rica, and South Korea attended the conference. Seventy individuals with MSUD ranging in age from infant to 47 years old were present.

A reception was held Thursday evening in the beautiful atrium of the Embassy Suites. During that time, MSUD families
enjoyed renewing old friendships and making new friends.

Friday was a full day with many topics and speakers, including:
  • Research Update on MSUD Mouse Models, Gregg Homanics, PhD
  • Current Status of Transplantation for MSUD, George Mazariegos, MD
  • Improving Self-Esteem, Darlene Honigford, LSW
  • MSUD-Teen/Young Adult: Jordan Bulcher, Libby Stone, Mark Silva, Galen Carrington, Alana Moceri
  • Breakouts (participants attended 2 of the 4 sessions, depending on their interests)
  • MSUD Basics, Dennis Bartholomew, MD
  • Sharing Daily Challenges, Elaina Jurecki, RD
  • Liver Transplantation, Parent Perspective, Denise Pinskey
  • It's So Easy-Low Pro Cooking, Malathy Ramanujam
  • MSUD Group Photo
Saturday was both informative and fun with a half-day of speakers and half-day picnic:
  • New Developments in the Treatment of Maple Syrup Disease, Holmes Morton, MD
  • Nutritional Management of MSUD, Elaina Jurecki, RD
  • MSUD Board Update
  • Closing Video
Family Gathering at a nearby park for all symposium attendees. All present enjoyed carnival games, large climbing toy, volleyball, badminton, juggler and, of course, lots of protein-free candy.

Special thanks to United Services Foundation for their generous donation, which allowed many MSUD families to attend the symposium.

Plan to attend the next symposium in the Summer of 2008. Don't miss the opportunity to learn from professionals and MSUD parents and feel the warmth and companionship of our special group!

Sandy Bulcher, Director, MSUD Family Support Group, Coordinator of MSUD Symposium

Symposium scrapbook

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The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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