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A Statistical Look at the Membership of the MSUD Family Support Group

The MSUD Family Support Group is made up of MSUD families, professionals, and interested others (grandparents etc) from the US and other countries. It is my responsibility to keep the database as current and accurate as possible. I thought that it might be interesting to look at our organization statistically.

  1. How many MSUD families are there in each state?

    Alaska-3
    Alabama-5
    Arkansas-1
    Arizona-4
    California-23
    Colorado-1
    Connecticut-4
    Delaware-1
    Florida-10
    Georgia
    Hawaii-4
    Mississippi-1
    North Carolina-3
    North Dakota-1
    Nebraska-2
    New Jersey-9
    New Mexico-1
    New York-17
    Nevada-2
    Ohio-10
    Oregon-4
    Pennsylvania-44
    Iowa-4
    Illinois
    Indiana-6
    Kansas-2
    Kentucky-7
    Louisiana-3
    Massachusetts-14
    Maryland-12
    Michigan-14
    Minnesota-2
    Missouri- 12
    Rhode Island-1
    South Carolina-2
    South Dakota-1
    Tennessee-6
    Texas-4
    Utah-1
    Virginia-4
    Washington-5
    Wisconsin-10
    West Virginia-1

    There are no MSUD families in our database from the states of Vermont, New Hampshire, Maine, Oklahoma, Wyoming, Montana, and Idaho
  2. How many MSUD children/adults from the US are listed in the database? 328
  3. How many US families have more than one child with MSUD? 37
  4. How many MSUD individuals from the US have had a liver transplant? 26
  5. How many MSUD children/adults from other countries are listed in the database? 93
  6. How many MSUD families are there from countries outside of the US?

    Argentina-2
    Australia-6
    Brazil-6
    Canada-10
    Chile-2
    Costa Rica-1
    England-14
    France-1
    Germany-3
    Honduras-1
    Iran-1
    Ireland-3
    Israel-4
    Italy-1
    Japan-1
    Jordan-1
    New Zealand-2
    Norway-1
    Pakistan-2
    Philippines-6
    Puerto Rico-3
    Qatar-1
    Saudi Arabia-2
    Scotland-1
    South Africa-1
    Spain-2
    Sweden-3

If you have a change in address, phone number or email, please contact me by calling me at 740-548-4475 or sending me an email (This email address is being protected from spambots. You need JavaScript enabled to view it.) so that I can make corrections. This will ensure that you continue to receive all of the mailings and that our statistics remain accurate.

CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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