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PKU News

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National PKU News is dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria.

Nationwide Newborn Screening

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The Newborn Screening patient registry serves as an internet-based support network for parents, guardians, and individuals with inherited metabolic disorders.

Children's PKU Network

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Founded to address the special needs and concerns of individuals with Phenylketonuria (PKU) and their families.

Cambrooke Therapeutics

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Leaders in Therapeutic Medical Nutrition.

CLIMB

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The Research Trust for Metabolic Diseases in Children.

Mevalia

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Mevalia Low Protein is a new range of tasty foods created by Dr. Schär, designed for those with inherited metabolic disorders including phenylketonuria (PKU), chronic kidney disease, maple syrup urine disease (MSUD), tyrosinaemia, homocystinuria and urea cycle disorders

PKU Organization of Illinois

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CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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