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MSUD Formula & Food

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Leaders in Therapeutic Medical Nutrition.
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Vitaflo® has been at the forefront of developing innovative specialized clinical nutrition products for Inborn Errors of Metabolism.
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Coram is a national provider of home infusion services and specialty pharmacy distribution with more than 80 branch locations across the country.
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We provide medical nutrition and formula for the management of metabolic conditions.
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MSUD Diet Powder.
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Makers of Ketonex-1 and Ketonex-2 medical formulas.
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Our products are very specialized in that they are not mass produced.
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Low protein microwavable rice and more.
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Lil‘s is a family owned business that treats everyone like family.
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Mevalia Low Protein is a new range of tasty foods created by Dr. Schär, designed for those with inherited metabolic disorders including phenylketonuria (PKU), chronic kidney disease, maple syrup urine disease (MSUD), tyrosinaemia, homocystinuria and urea cycle disorders
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MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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Transform

A Child's Life

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