The Orphan Disease Center And The MSUD Family Support Group Million Dollar Bike Ride Was Again A HUGE Success!

The Penn Medicine Orphan Disease Center (ODC) hosted the 7th Annual Million Dollar Bike Ride on Saturday, June 12th to raise money for rare disease research. This event helps us support our goal to improve treatments for MSUD patients and move toward a potential cure for MSUD. Participating in the Million Dollar Bike Ride or by making a donation directly to the MSUD Family Support Group research fund moves us toward that goal.

While the event is usually held in the streets of Philadelphia, the pandemic again forced a “virtual” event.  Over a dozen riders in the United States and Canada supported MSUD research by registering to ride in the ride in the event in their neighborhoods or near their homes. 

While  “Team Scott” raised more than enough donations to earn matching funds from the event sponsors and fund an additional MSUD research project we are mindful that research is not a single project, but rather a journey. You can make this year’s MDBR campaign an even bigger success. To contribute to the MSUD Family Support Group Research Fund, just click on the “Donate” button at the bottom of this page. 

 

Meanwhile, here are a few of those who rode in this years Million Dollar Bike Ride!.

 

 

 


 

 

Zev’s Family and Friends, Chicago

 

 

Indigo’s Family, Washington



Scott’s Family, Massachusetts

 

 

 

 

The Alba Family, Canada

Due to pandemic restrictions in Canada, the group was unable to assemble. Determined to provide support to the team, a family member completed a 25 km (15 miles) rider through Winnipeg.  

 

Support “Team Scott”

 

The MSUD MDBR Team is named in honor of Scott Foster, son of Herb and Diane Foster who was born in 1971. Scott was the first person born in Massachusetts to be diagnosed with Maple Syrup Urine Disease (MSUD) by the state’s newborn screening program.

Scott’s first two years were exceedingly difficult. He was a frequent patient in the hospital, requiring visits every week or so. He became very sick and was hospitalized for nearly two months before recovering and going home.

For the next 20 years Scott did very well leading as normal a life as possible for a person with MSUD. He loved sports of all kinds, played baseball, was an excellent bowler and also worked at the family bowling business. After graduating from high school Scott attended the local community college, coming within a course of completing his Associates degree. At the time, it was a remarkable achievement for an individual with MSUD. Following in his dad’s footsteps, he interned at the Metropolitan Boston Transit Authority and was hired as a motorman on the red line. This was a great responsibility carrying thousands of passengers every week. He was so proud to be working for the MBTA. He also had a steady girlfriend and looked forward to his future.

After a brief illness, Scott succumbed to complications of MSUD and passed away when just 22 years old. After passing, his organs were donated to the New England Organ Bank to be used to improve the lives of others. Over twenty individuals received Scott’s organs, including his heart.

Scott was a very caring person who would go out of his way to help someone in need. He is greatly missed by his family and all those who knew him.

Donate To Our Research Fund

 

  • Donate directly to the MSUD Family Support Group Research Fund.  These donations enable us to pursue our research plan. Check out our past research projects, several of which have been funded with the proceeds of previous Million Dollar Bike Rides!

 

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