Key Points

  • The 2022 Symposium will be held in Lancaster, PA.
  • Additional details will be announced as they become available.

2022 MSUD Family Support Group Symposium

Let us know what you would like to hear and see at the symposium and BTW, don’t hesitate to volunteer!


The biennial 2022 MSUD Symposium will be held in Lancaster, PA, as follows:


Lancaster Marriott at Penn Square

25 S Queen St, Lancaster, PA 17603

The symposium will start Thursday evening Aug 4th and end before lunch on Saturday Aug 6th. Also, the symposium will be hosted by the Clinic For Special Children


Previous symposiums have been attended by about 250 persons from nearly have the states across the U.S.A., and also from several countries.  Attendees include MSUD patients and their families, nutritional food suppliers, and medical professionals.

Speakers discuss the science and treatment of MSUD, the current status of research approaches, living life with MSUD, and other topics. Family socializing and recreation is also included. If you have additional ideas, let us know!.

Conducting such an event takes a lot of teamwork. Please consider assisting as a volunteer. We’ll provide more information soon.



Key Points

  • June 12, 2021 in Philadelphia, PA.
  • Have raised $10 million for rare disease research
  • $300,000 for MSUD research
  • Matching funds are provided

2021 Million Dollar Bike Ride 

Support the MSUD Research Program

The 2021 Million Dollar Bike Ride is sponsored by the Orphan Disease Center at the University of Pennsylvania. This years event will again be a “virtual” event, meaning you can participate from your own hometown.

If you can’t ride you can still support the MSUD team by making a donation to other riders Giving Pages or to the MSUD Family Support Group web site. 

For more information, see “Events” on the main menu and then click on the Million Dollar Bike Ride page.