We’re Back !

 

The MSUD Family Support Group Will Again Ride In The Million Dollar Bike Ride

 

The Penn Medicine Orphan Disease Center (ODC) will again host its annual Million Dollar Bike Ride and has invited the MSUD Family Support Group to again participate in the event. After enduring two years of the pandemic, this outdoor event will return to the streets of Philadelphia on Saturday, June 11th,2022.

The Million Dollar Bike Ride raises money for rare disease research. This event helps us support our goal to improve treatments for MSUD patients and move toward a potential cure for MSUD.

This will be our fifth year participating in this event. The MSUD team, “Team Scott” has raised donations to support research for improved treatments and a potential cure for MSUD. Each year, our goal is to fund at least one research project. Of course, more is needed and we won’t stop with just one project, especially since the donations we raise donations are matched up to  an additional $30,000 by the event sponsors!

Track Our Progress

 

Check back to track our progress toward achieving our goal. Each week we will update how much has been raised and show the results on our “thermometer” below.

 

Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.Raised $20,382 towards the $40,000 target.$20,382Raised $20,382 towards the $40,000 target.

Update for May 19, 2022

We have made substantial progress toward our 2022 MDBR campaign goals of maximizing the matching funds to be awarded and funding at least one MSUD research project–but we’re not there yet and there is still work to do and three weeks to get it done!  Not time to let up just yet–let’s push on toward the goals!

How Can I Support Team Scott?

 

Last year, over a dozen riders in the United States and Canada supported MSUD research by riding in their neighborhoods or near their homes. Some of their stories are highlighted below.

You can participate in this year’s event in the following ways:

  • REGISTER (with fundraising) to ride in the event in Philadelphia by logging into the MDBR website.
  • REGISTER (with fundraising) to ride in the event in in your neighborhood as if you were riding in Philadelphia.
  • REGISTER (without fundraising). Be part of the team, but with no fundraising commitment.
  • DONATE through this website by clicking the button below. No matter how much or how little you are willing to donate, every dollar counts towards finding better treatments and a cure for MSUD.
  • ENCOURAGE your friends and family to visit one of these web pages and donate by clicking one of the buttons below.

MSUD research is not a single project, but rather a journey. You can make this year’s MDBR campaign an even bigger success. To contribute to the MSUD Family Support Group Research Fund, just click on one of the “Donate” buttons at the bottom of this page.  Participating in the Million Dollar Bike Ride or making a donation directly to the MSUD Family Support Group research fund moves us toward that goal.

Meanwhile, here are a few of those who rode in last year’s Million Dollar Bike Ride!

 

 

 


 

 

Zev’s Family and Friends, Chicago

 

 

Indigo’s Family, Washington



Scott’s Family, Massachusetts

 

 

 

 

The Alba Family, Canada

Due to pandemic restrictions in Canada, the group was unable to assemble. Determined to provide support to the team, a family member completed a 25 km (15 miles) rider through Winnipeg.  

 

Support “Team Scott”

 

The MSUD MDBR Team is named in honor of Scott Foster, son of Herb and Diane Foster who was born in 1971. Scott was the first person born in Massachusetts to be diagnosed with Maple Syrup Urine Disease (MSUD) by the state’s newborn screening program.

Scott’s first two years were exceedingly difficult. He was a frequent patient in the hospital, requiring visits every week or so. He became very sick and was hospitalized for nearly two months before recovering and going home.

For the next 20 years Scott did very well leading as normal a life as possible for a person with MSUD. He loved sports of all kinds, played baseball, was an excellent bowler and also worked at the family bowling business. After graduating from high school Scott attended the local community college, coming within a course of completing his Associates degree. At the time, it was a remarkable achievement for an individual with MSUD. Following in his dad’s footsteps, he interned at the Metropolitan Boston Transit Authority and was hired as a motorman on the red line. This was a great responsibility carrying thousands of passengers every week. He was so proud to be working for the MBTA. He also had a steady girlfriend and looked forward to his future.

After a brief illness, Scott succumbed to complications of MSUD and passed away when just 22 years old. After passing, his organs were donated to the New England Organ Bank to be used to improve the lives of others. Over twenty individuals received Scott’s organs, including his heart.

Scott was a very caring person who would go out of his way to help someone in need. He is greatly missed by his family and all those who knew him.

Donate To Our Research Fund

 

  • Donate directly to the MSUD Family Support Group Research Fund.  These donations enable us to pursue our research plan. Check out our past research projects, several of which have been funded with the proceeds of previous Million Dollar Bike Rides!

 

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