Who Are We?


The MSUD Family Support Group is a non-profit volunteer-run organization serving families and professionals worldwide. Founded in 1982 when a group of families gathered together for mutual support and shared information, our organization continues to grow and develop resources to meet our goals of support, education, expanded research, and advocacy.

The MSUD Family Support Group, a non-profit organization, now includes families and professionals worldwide. It is a growing organization and continues to develop resources to meet its goals of support, education and advocacy.


The goals of the MSUD Family Support Group are:

Connect and Engage Families and Professionals:

We provide opportunities for support and personal contact for those with MSUD, their families, and professionals. We connect and engage through our newsletter, eblasts, symposia, and social media.


We strive to improve the lives of those with MSUD by promoting and supporting research that may lead to better treatments and a cure for MSUD.


We improve the lives of those with MSUD by fostering awareness and supporting the enactment of public policies on the State and Federal levels which will further research and improve access to care for individuals with MSUD.


The MSUD Family Support Group Is An All-volunteer Organization





The MSUD Family Support Group is a tax exempt 501(c)3 organization. We are 100% volunteer run and funded almost entirely by donations.

Join our email list to receive copies of our semi-annual newsletter. Families with newly diagnosed MSUD children can call any of the members of the Board of Directors (see “Contacts”) to learn more about MSUD and the MSUD Family Support Group. Your generous donations will help us meet the needs of our community. Volunteers are always needed. Click here if you’d like to help.