President, Board of Directors Sandy is the President of the Board of Directors of the MSUD Family Support Group and Symposium Coordinator. She is the mother of Jordan with Classic MSUD and has been involved in the organization in various roles for many years. Sandy retired from a long nursing career in 2025.
Member, Board of Directors For over 20 years, Julia has held various roles within healthcare organizations. Her son Conor’s diagnosis with Classic MSUD inspired her to join the Clinic for Special Children, where she now supports others living with rare genetic diseases. She lives in Stevens, PA, with her husband, Daryl, and their four children.
Secretary, Board of Directors and Research Lead Karen is a Registered Dietitian with a private practice in White Plains, NY. She teaches graduate level nutrition at Teachers College Columbia University in New York. She earned a BA in biology from Washington University and a doctoral degree in nutrition from Teachers College Columbia University. Karen is…