2026 Symposium Cleveland, Ohio. MSUD. Thank You for Making the 21st MSUD Symposium a Success. June 25–27, 2026, Cleveland, Ohio. We are grateful to the families, clinicians, researchers, volunteers, and sponsors who came together in Cleveland for a meaningful weekend of learning, connection, and hope. Thank you for helping make the 21st MSUD Symposium such a special experience for our community.

The MSUD Symposium: Fueled by the Dedication of Our Community

The MSUD Symposium is fueled by the dedication of our community. Every other year, families, clinicians, researchers, and industry partners gather for this signature event of the MSUD Family Support Group.

For more than two decades, the MSUD Symposium has provided a place to learn about advances in research and treatment, connect with others who understand the journey, and strengthen the bonds of our community. Families leave with new knowledge, lifelong friendships, and the reassurance that they are not alone. 

The MSUD Symposium continues to thrive because it reflects the love, care, and commitment of the MSUD community. We are proud to carry this tradition forward, bringing together voices from across the country and around the world.

Group of symposium attendees.
2026 MSUD Science Summit

2026 MSUD Science Summit

The 3rd MSUD Science Summit was held on Thursday, June 25, 2026, at Embassy Suites by Hilton Cleveland Rockside in Independence, Ohio. The Summit brought together leading researchers, clinicians, and MSUD Family Support Group leaders for a full day of discussion focused on advancing care and treatment for MSUD.

Topics included emerging therapeutics, gene therapy research, liver transplantation, brain health, nutrition, registry findings, metformin therapy, and more. The day also provided valuable opportunities for discussion, collaboration, and shared learning among experts and community leaders.

We are grateful to all of the speakers, researchers, clinicians, families, and supporters who helped make the Science Summit a meaningful step forward for the MSUD community.

Speaker Presentations

Click on the presentation title to view each speaker’s presentation.

Welcome

Denise Kolivoski and Sandy Bulcher

Fundraising: Moving Our Mission Forward

Denise Kolivoski, MSUD FSG Executive Director

Finding Your Voice The Power of Advocacy

Jordann Coleman, MSUD FSG Board Member

Advocacy through Storytelling

Evie Vancisin

The History of MSUD Therapeutics: Looking Back to see the Future

Kevin Strauss, MD

MSUD Research Advancing Priorities of the MSUD Family Support Group

Karen Dolins, EdD, RD

Gene Therapy Understanding the Basics

Jerry Vockley, MD, PhD

Treatment of Classic MSUD in a Large Bovine Model: Long term Outcomes

Kevin Strauss, MD

A Window into the MSUD Brain Using fNIRS to Gain Insights

Andrea Gropman, MD

Metformin Therapy to Facilitate Weight Loss in Adults with Classic MSUD

Grace Meier, MD

Liver Transplant for MSUD: Choosing a Center

George Mazariegos, MD and Stacey Cote MSN, RN, CPN

Liver Transplant for MSUD: Care Post Transplant

George Mazariegos, MD and Stacey Cote MSN, RN, CPN 

Liver Transplant for MSUD: Lessons From The Past Three Decades

George Mazariegos, MD and Stacey Cote MSN, RN, CPN

Medical and Nutrition Management: Understanding the Basics

Sandy Van Calcar, PhD, RD

Professional Panel

Kevin Strauss MD, Sandy Van Calcar,PhD, RD, George Mazariegos, MD, and Jessica Gold, MD

Mental Health and Developmental Considerations in MSUD

Diana Shellmer, PhD

Balancing Nutrition and Physical Activity for Health and Wellbeing with MSUD

Karen Dolins, EdD, RD and Sandy Van Calcar, PhD, RD

Thank you for supporting individuals and families living with MSUD.
Thank you to Our Sponsors graphic for the MSUD Symposium with sponsor logos listed by level: Family Night Sponsor: Children’s Hospital of Pittsburgh and UPMC; Diamond Sponsors: Otsuka and Syntis Bio; Platinum Sponsors: Nutricia, Zoia Pharma, and Northern Comfort; Gold Sponsors: Integrity Compounding Pharmacy, Nexus Patient Services, Vitaflo, and Plowshare Therapeutics; Silver Sponsors: Clinic for Special Children, Understand PKU, Ultragenyx, and Arcturus Therapeutics; Supporting Sponsors: Abbott, Perseo Pharma, and Herb Foster.