The MSUD Symposium is fueled by the dedication of our community. Every other year, families, clinicians, researchers, and industry partners gather for this signature event of the MSUD Family Support Group.
For more than two decades, the MSUD Symposium has provided a place to learn about advances in research and treatment, connect with others who understand the journey, and strengthen the bonds of our community. Families leave with new knowledge, lifelong friendships, and the reassurance that they are not alone.
The MSUD Symposium continues to thrive because it reflects the love, care, and commitment of the MSUD community. We are proud to carry this tradition forward, bringing together voices from across the country and around the world.
The 3rd MSUD Science Summit was held on Thursday, June 25, 2026, at Embassy Suites by Hilton Cleveland Rockside in Independence, Ohio. The Summit brought together leading researchers, clinicians, and MSUD Family Support Group leaders for a full day of discussion focused on advancing care and treatment for MSUD.
Topics included emerging therapeutics, gene therapy research, liver transplantation, brain health, nutrition, registry findings, metformin therapy, and more. The day also provided valuable opportunities for discussion, collaboration, and shared learning among experts and community leaders.
We are grateful to all of the speakers, researchers, clinicians, families, and supporters who helped make the Science Summit a meaningful step forward for the MSUD community.
|
Denise Kolivoski and Sandy Bulcher |
|
|
Denise Kolivoski, MSUD FSG Executive Director |
|
|
Jordann Coleman, MSUD FSG Board Member |
|
|
Evie Vancisin |
|
|
The History of MSUD Therapeutics: Looking Back to see the Future |
Kevin Strauss, MD |
|
MSUD Research Advancing Priorities of the MSUD Family Support Group |
Karen Dolins, EdD, RD |
|
Jerry Vockley, MD, PhD |
|
|
Treatment of Classic MSUD in a Large Bovine Model: Long term Outcomes |
Kevin Strauss, MD |
|
Andrea Gropman, MD |
|
|
Metformin Therapy to Facilitate Weight Loss in Adults with Classic MSUD |
Grace Meier, MD |
|
George Mazariegos, MD and Stacey Cote MSN, RN, CPN |
|
|
George Mazariegos, MD and Stacey Cote MSN, RN, CPN |
|
|
Liver Transplant for MSUD: Lessons From The Past Three Decades |
George Mazariegos, MD and Stacey Cote MSN, RN, CPN |
|
Sandy Van Calcar, PhD, RD |
|
|
Kevin Strauss MD, Sandy Van Calcar,PhD, RD, George Mazariegos, MD, and Jessica Gold, MD |
|
|
Diana Shellmer, PhD |
|
|
Balancing Nutrition and Physical Activity for Health and Wellbeing with MSUD |
Karen Dolins, EdD, RD and Sandy Van Calcar, PhD, RD |