Welcome To The MSUD Family Support Group

The MSUD Family Support Group is a non-profit volunteer-run organization serving families and professionals worldwide. Founded in 1982 when a group of families gathered together for mutual support and shared information, our organization continues to grow and develop resources to meet our goals of support, education, expanded research, and advocacy.


Symposium Highlights

See pictures of the symposium and other highlights.

Go To Symposium Pictures 


THANK YOU to the sponsors of the 20th MSUD Symposium!

Thank you to the sponsors and supporters of the 20th MSUD Symposium held in Reston, Virginia on June 27-29. We had about 200 attendees, including families and professionals from over 20 US states and six other countries. Among them were 40 individuals with MSUD, ranging from six months to 55 years old, and 8 people who have had liver transplants. We were also pleased to welcome 12 families attending the symposium for the first time.

Special thanks to our presenting sponsor, Nutricia, for their major sponsorship.



We would also like to extend our gratitude to all our symposium sponsors.



The MSUD Family Support Group Is A Volunteer Led And Professionally Managed Organization

The MSUD Family Support Group governance is provided by an all-volunteer board of directors and one paid Executive Director. Each member of the board of directors is a parent of an MSUD child. In addition to the board members and Executive Director there are volunteers that assist with special projects and initiatives.

Families with newly diagnosed MSUD children can call members of the Board of Directors (see “Contacts”) to learn more about MSUD and the MSUD Family Support Group. Volunteers are always needed and your generous donations help us do our work. Click below if you’d like to help and to donate.

The MSUD Family Support Group is a tax exempt 501(c)3 organization.


Stay In Touch

Help us achieve our goals! Assistance is always needed to connect and support MSUD families, prepare our newsletters, assist in the biennial symposium, participate in advocacy events, and other activities.

Volunteer Today!   


Support MSUD Research And Other Services

We are almost entirely funded by donations. We rely on these donations to fund our newsletters, biennial symposium, our research program and other activities. We sincerely appreciate any donations you may choose to make.


Thanks to Our Sponsors

We extend our heartfelt thanks to the supporters of the MSUD Family Support Group. Their commitment and support play a crucial role in our mission to support families and individuals affected by MSUD. We look forward to securing more sponsorships to continue enhancing our worldwide mission of serving individuals and families with MSUD.