MSUD FAMILY SUPPORT GROUP
Protecting your private information is our priority. This Statement of Privacy applies to The MSUD Family Support Group and governs data collection and usage. The MSUD Family Support Group website www.msud-support.org (“Website”) is a non-profit organization that provides information and support to the MSUD community, comprised of MSUD patients, families, and medical professionals. site. By using the Website, you consent to the data practices described in this statement.
Collection of your Personal Information
In order to better provide you with products and services offered, MSUD Family Support Group may collect personally identifiable information, such as your e-mail address, name, home or work address or telephone number. The MSUD Family Support Group may also collect anonymous demographic information, which is not unique to you, such as your ZIP code, age, gender, preferences, interests and favorites.
Please keep in mind that if you directly disclose personally identifiable information or personally sensitive data through MSUD Family Support Group’s public message boards, this information may be collected and used by others.
There is also information about your computer hardware and software that may be automatically collected by The MSUD Family Support Group. This information can include: your IP address, browser type, domain names, access times and referring Web site addresses. This information is used by The MSUD Family Support Group for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the The MSUD Family Support Group Web site.
We do not collect any personal information about you unless you voluntarily provide it to us. However, you may be required to provide certain personal information to us or other third parties when you elect to use certain products or services. These may include: (a) entering a sweepstakes or contest sponsored by us or one of our partners; (b) signing up for special offers from selected third parties; (c) sending us an email message; or (d) submitting your credit card or other payment information when making donations (such as to PayPal). To wit, we will use your information for, but not limited to, communicating with you in relation to services and/or products you have requested from us. We also may gather additional personal or non-personal information in the future.
The MSUD Family Support Group encourages you to review the privacy statements of Web sites you choose to link to from The MSUD Family Support Group web site so that you can understand how those Web sites collect, use and share your information. The MSUD Family Support Group is not responsible for the privacy statements or other content on Web sites outside of The MSUD Family Support Group web site.
Use of your Personal Information
MSUD Family Support Group collects and uses your personal information to operate and deliver the services you have requested. MSUD Family Support Group may also use your personally identifiable information to inform you of other products or services available from MSUD Family Support Group and its affiliates. The MSUD Family Support Group may also contact you via surveys to conduct research about your opinion of current services or of potential new services that may be offered.
Sharing Information with Third Parties
MSUD Family Support Group does not sell, rent or, lease its customer lists to third parties.
The MSUD Family Support Group may share data with trusted partners to help perform statistical analysis, send you email or postal mail, or provide support. All such third parties are prohibited from using your personal information except to provide these services to MSUD Family Support Group, and they are required to maintain the confidentiality of your information.
The MSUD Family Support Group does not collect, use, or disclose sensitive personal information, such as race, religion, or political affiliations, without your explicit consent.
The MSUD Family Support Group keeps track of the Web sites and pages our customers visit within the Website, in order to determine what services are the most popular within the Website. This data is used to deliver customized content and advertising within the Website to customers whose behavior indicates that they are interested in a particular subject area.
MSUD Family Support Group may disclose your personal information, without notice, if required to do so by law or in the good faith belief that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on MSUD Family Support Group or the site; (b) protect and defend the rights or property of MSUD Family Support Group; and/or (c) act under exigent circumstances to protect the personal safety of users of MSUD Family Support Group, or the public.
Automatically Collected Information
Information about your computer hardware and software may be automatically collected by MSUD Family Support Group. This information can include: your IP address, browser type, domain names, access times and referring website addresses. This information is used for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the MSUD Family Support Group website.
Security of your Personal Information
The MSUD Family Support Group secures your personal information from unauthorized access, use or disclosure The MSUD Family Support Group secures the personally identifiable information you provide on computer servers in a controlled, secure environment, protected from unauthorized access, use or disclosure. When personal information (such as a credit card number) is transmitted to other Web sites, it is protected through the use of encryption, such as the Secure Socket Layer (SSL) protocol.
The MSUD Family Support Group website may use “cookies” to help you personalize your online experience. A cookie is a text file that is placed on your hard disk by a web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.
One of the primary purposes of cookies is to provide a convenience feature to save you time. The purpose of a cookie is to tell the Web server that you have returned to a specific page. For example, if you personalize MSUD Family Support Group pages, or register with MSUD Family Support Group site or services, a cookie helps MSUD Family Support Group to recall your specific information on subsequent visits. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on. When you return to the same MSUD Family Support Group website, the information you previously provided can be retrieved, so you can easily use the MSUD Family Support Group features that you customized.
You have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the interactive features of the MSUD Family Support Group services or websites you visit.
This website contains links to other sites. Please be aware that we are not responsible for the content or privacy practices of such other sites. We encourage our users to be aware when they leave our site and to read the privacy statements of any other site that collects personally identifiable information.
Right to Deletion
Subject to certain exceptions set out below, on receipt of a verifiable request from you, we will:
- Delete your personal information from our records; and
- Direct any service providers to delete your personal information from their records.
Please note that we may not be able to comply with requests to delete your personal information if it is necessary to:
- Complete the transaction for which the personal information was collected, fulfill the terms of a written warranty or product recall conducted in accordance with federal law, provide a good or service requested by you, or reasonably anticipated within the context of our ongoing business relationship with you, or otherwise perform a contract between you and us;
- Detect security incidents, protect against malicious, deceptive, fraudulent, or illegal activity; or prosecute those responsible for that activity;
- Debug to identify and repair errors that impair existing intended functionality;
- Exercise free speech, ensure the right of another consumer to exercise his or her right of free speech, or exercise another right provided for by law;
- Comply with the California Electronic Communications Privacy Act;
- Engage in public or peer-reviewed scientific, historical, or statistical research in the public interest that adheres to all other applicable ethics and privacy laws, when our deletion of the information is likely to render impossible or seriously impair the achievement of such research, provided we have obtained your informed consent;
- Enable solely internal uses that are reasonably aligned with your expectations based on your relationship with us;
- Comply with an existing legal obligation; or
- Otherwise use your personal information, internally, in a lawful manner that is compatible with the context in which you provided the information.
Children Under Thirteen
MSUD Family Support Group does not knowingly collect personally identifiable information from children under the age of thirteen. If you are under the age of thirteen, you must ask your parent or guardian for permission to use this website.
From time to time, MSUD Family Support Group may contact you via email for the purpose of providing announcements, promotional offers, alerts, confirmations, surveys, and/or other general communication.
Changes to this Statement
MSUD Family Support Group welcomes your questions or comments regarding this Statement of Privacy. If you believe that MSUD Family Support Group has not adhered to this Statement, please contact MSUD Family Support Group by using the contact form at: https://www.msud-support.org/contact/.