2024 MSUD Family Support Group Symposium

Hyatt Regency Hotel, Reston, Virginia

June 27-29th, 2024

MSUD Symposium 2024 is quickly approaching

It has been SO long since we all got together. You won’t want to miss the comprehensive review of MSUD research. Presenters will introduce new research or provide updates on their current projects in concise presentations.  Besides research, some of the other topics that will be covered include medical and dietary management, liver transplantation, neuropsychology, advocacy, and fundraising. In addition to increasing your MSUD knowledge, you ‘ll have opportunities to renew old friendships and meet new families.

Be sure to bookmark this web page and check back occasionally for updates.

Location

Hyatt Regency Reston. The hotel is located 7 miles from Dulles International Airport and 20 miles from Washington DC. The Reston Town Center, which boasts many shops and restaurants is located next to the hotel.

 Hotel Information: Address -1800 Presidents Street, Reston, VA 20190

Phone: 703-709-1234

Website- reston.regency@hyatt.com

 

Schedule

The conference starts Thursday evening June 27th at 7PM with registration and reception. The sessions will be from 8AM- 5PM on Friday June 28th and 8AM- 12N on Saturday June 29th. A complete schedule and agenda will be available on the MSUD website soon.

Speakers: (not yet complete)

Kevin Strauss, MD- Bovine Gene Therapy

John Counsell, PhD- Gene Therapy

Max Wynn, PhD- Kinase Inhibitors

Benjamin Forred, MBA- CoRDS MSUD Patient Registry

Andrea Gropman, MD and Kosar Khaksari, PhD- fNIRs Monitoring

Rebecca Ahrens-Nicklas, MD- Neuropsyche MSUD Mouse & MSUD Prevalence Study

Jessica Gold, MD, PhD- Neuropsyche MSUD Survey

Nicholas Ah Mew, MD- Medical Management of MSUD

Erin MacLeod, RD, PhD- Nutritional Management of MSUD

Nada Yazigi, MD- Liver Transplantation/Medical

Juan Guerra, MD- Liver Transplantation/Surgical

Shiri Widezki, MSUD parent- Impact of MSUD on the Family

Registration and Cost

Please register on this website. To do so, click this button by May 24, 2024 if you are planning to attend so that we will have an accurate count of attendees.  

Symposium Dates: June 27-29, 2024

The registration fee to attend the entire 3-day conference is $30 per person and a maximum of $100 per family. The fee is to help defray symposium costs. This can be paid via PayPal when you click the “Register Now” button below. Just complete the registration form and hit the “Submit” button at the bottom of the form. You will be taken to the PayPal site for payment. To pay, you can use your PayPal account. You can also your credit or debit card and check out as a “Guest”. Alternatively, you can mail a check with the registration form that was mailed to your home. Make check payable to “MSUD Family Support Group” and mail to Denise Kolivoski, Executive Director- MSUD Family Support Group, 4028 Calico Dr, Erie, PA 16506.

Register Now

Hotel Rate and Accommodations

Room rate is $159 per night plus tax. This special group rate is available three days before and after the symposium, however, there are a limited number of rooms available at the reduced rate before and after the symposium. If you are planning to do some sightseeing and will be arriving earlier or staying later, make your reservation soon.  Rooms with 2 double beds or 1 king bed are available.  Accessible rooms are available on request. The hotel has a restaurant and there are many places to eat within walking distance of the hotel.  Other hotel amenities include an indoor pool, refrigerator in each room and fitness center. Parking is available at a reduced rate of $4 for up to 2 hours, $6 for 2-4 hours, $10 daily or $8 overnight.

Hotel reservations: You can make your reservation now! This special room rate will be available until June 5, 2024 or until the group block is sold out, whichever comes first.  Make a reservation by clicking the button below or call the hotel directly at 703-709-1234. State that you are attending the MSUD Symposium to receive the discounted rate.

Hyatt Regency Reservations

 Meals

During the Thursday evening June 27th registration /reception, dinner will be provided which will include regular and low protein pizza, salad and regular and low protein cookies.  Breakfast buffet on Friday June 28 th, lunch buffet on Friday June 28th and breakfast buffet on Saturday June 29 th will be provided to all attendees. Low protein food options will be available for all meals. Dinner Friday evening June 28 th is on your own.

If you have other dietary needs such as Kosher or gluten free, please inform Denise Kolivoski.

Hotel check-in

4:00PM and check- out is 11:00AM. Early check may be an option depending on room availability.

Attire

Comfortable, casual attire is appropriate for the entire symposium. Consider bringing a sweater in case the meeting room is colder than you prefer.

Children’s Activity Room

There will be a room available with activities/entertainment for children and there will be several volunteers to assist the children. However, there will be no babysitting services. Please keep this in mind as you plan your trip. Consider bringing a grandparent, teenager, or sibling to babysit your younger children. Older children, teens, and young adults are encouraged to attend the general sessions.

Transportation to the hotel from Dulles International Airport

There is not a shuttle available from the airport to the hotel, however, you can travel to and from the airport and Hyatt Regency via the Metro Silver Line.  Dulles Airport is located at the Washington Dulles International Metrorail Station on the Silver Line. Take the Silver Line from Dulles International Airport to the Reston Town Center stop near the hotel. There is a complimentary shuttle that runs every 15 minutes Mon through Fri 7AM-7PM to and from the Reston Town Center stop to the hotel. If you choose to walk between the Reston Town Center stop and the hotel entrance, the distance is 0.8 miles. Of course, transportation via a taxi or Uber are also options.

Travel Assistance

We have funds available through the United Service Foundation to assist with travel expenses. If you would like to attend the symposium and need financial assistance, you may apply by sending an email to msudsymposiumtravel@gmail.com or by contacting Denise Kolivoski at 814-580-8449

Don’t forget to return your registration form or complete it online and make your hotel reservation!

If you have any questions, feel free to reach out to Sandy Bulcher at 740-972-5619 or email at sandybulcher@gmail.com or Denise Kolivoski at 814-580-8449 or execdirector@msud-support.org

Aside from research, the biennial symposium is the single most expensive activity funded by the MSUD Family Support Group. Please consider a donation so that we can continue with this high quality and very worthwhile experience for the MSUD community.

Donate

 

See you in Reston!

Sandy Bulcher, President MSUD Family Support Group and Symposium Coordinator and Denise Kolivoski, Executive Director MSUD Family Support Group